6pm Greenwich Meantime : Check GMT time here : GMT current time
Professor Elizabeth Shephard & Professor Ian Phillips
(veteran researchers of FMO3 enzyme and trimethylaminuria)
authors of :
NIH Gene review entry for TMAU
part-authors of TMAU clinical utility genecard
Slideshow presentation : FMO3 : bugs,genes and drugs
Hosted by : Rob Pleticha of Eurordis and rareconnect.org
A joint-initiative between rareconnect and TMAU/FMO3 advocates
To take place in the rareconnect.org webinar room (flashplayer needed) : Click here to go to the Eurordis Webinar room
TMAU/FMO3 webinar 23rd Sept : will you attend ?
Who is the webinar for ?
The webinar is for everyone in the malodor community but particularly those who feel they have a metabolic malodor issue that may possibly be due to overload of FMO3 enzyme. But everyone is welcome to pop in and listen. You can even ask questions if you want (by text or maybe by audio or webcam)
Why only 50 places available in the room ?
It is standard practice to take a license out from Adobe Connect for a number of people per room at anytime. The limit in this room is 50 people at anytime. Hopefully it will not be an issue but if it is then long-term hopefully an answer will be found.
Webinar will be recorded and posted on youtube :
The webinar will be recorded and posted on youtube afterwards so that everyone; sufferers and others interested, can view it afterwards. The first webinar had sufferer Karen as a guest and you can hear her speech here : Karen on TMAU
If privacy is an issue :
If you are concerned about privacy, you can use a username for the room. There is no need to use your real name. Audience members cannot be seen and you do not need a webcam or mic to listen in. Alternatively if you are not concerned about privacy you may be able to ask questions by audio or video as long as the technology holds up (this is our first major webinar so we will be seeing how the room copes with so many visitors).
Check the timezone :
Being fully on the internet, everyone worldwide can join. It is scheduled for 7pm UK time which will also be 6pm Greenwich Mean Time. Look out for any changing local time zones over the weekend etc. Everyone is welcome.
A special thanks to Rob Pleticha at rareconnect.org and Eurordis for hosting the event and making it possible, and for long-time friends of the community Professor's Phillips and Shephard for making it possible for us to have guest speakers ! Let's hope this webinar acts as a template to show health-disorder communities how webinars can unite them, help create networks, and further their causes.
About Professor Shephard : Professor of molecular biology. Based in University College, London. Link to university page of Professor Shephard
About Professor Phillips : Professor of molecular biology at Queen Mary University, London Link to university page for Professor Phillips
About Rob Pleticha and rareconnect.org
1 comments:
thank to all that participated and set this up . Awesome . Look forward to the next !!