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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, May 27, 2008

sulfate reducing bacteria : hydrogen sulfide smells of rotten egg

A gut feeling
8 August 1998

Gail Vines
New Scientist Environment

WHAT'S the difference between the contents of your bowels and the noxious black sludge at the bottom of an estuary? Not a lot perhaps—particularly if you live on a diet of junk food. The same sulphur loving bacteria that give mud in estuaries and ocean sediments their pungent, rotten-egg smell may have invaded your gut. In the sea, they are notorious troublemakers with a penchant for corroding oil pipelines, and their effect on human passageways may be equally devastating...

These mud-loving organisms, officially known as sulphate-reducing bacteria, find plenty to feast on in the oxygen-free (anaerobic) sea sediments. That's because they can exploit both the hydrogen that comes from the fermentation of countless microbes in the stagnant mud, and the plentiful sulphate in seawater. The bugs make their own energy from these raw ingredients, converting sulphate to sulphite and then creating a poisonous waste product: hydrogen sulphide, with its telltale smell of rotten eggs. To humans, the compound is as toxic as cyanide. In water, it rapidly becomes highly corrosive sulphuric acid...

Full article:


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