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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Tuesday, May 27, 2008

Update on the blog

Hello everyone,

It gives me great satisfaction to see all of you visiting and participating in this blog. I hope you find it to be a place of refuge where you can feel at home, where you can sit back, relax, and find much needed information. I also encourage everyone to participate in the polls because this tells the experts that we have the numbers and the drive to participate in surveys and questionnaires for research purposes in an effort to actively seek a cure to our respective medical malodor diseases.

Let me tell you a bit about how the blog has done in the past 2 days since its launch. These last 2 days, so many people have visited and actively participate in reading through the posts, filling out the polls, emailing recommendations and comments to me. Today was busier than yesterday. Yesterday we had close to 30 new visitors, and today close to 60 visitors (some repeat visitors), and most returned at least once each day. About half participated in the polls, so I think that in addition to sufferers’ visit, there must also be family members, students, physicians, researches, and other non-sufferers.

The blog you’ve seen now is only the skeleton of what I envision it to be. It is going to be nipped and trimmed, and developed to bring this effort to much greater heights, but it is totally and completely dependent on the participation and commitment from both, sufferers and experts. I am so inspired to see the tremendous initial response, and I thank you all.

Maria (mpdela)

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