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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, May 27, 2008

Update on the blog

Hello everyone,

It gives me great satisfaction to see all of you visiting and participating in this blog. I hope you find it to be a place of refuge where you can feel at home, where you can sit back, relax, and find much needed information. I also encourage everyone to participate in the polls because this tells the experts that we have the numbers and the drive to participate in surveys and questionnaires for research purposes in an effort to actively seek a cure to our respective medical malodor diseases.

Let me tell you a bit about how the blog has done in the past 2 days since its launch. These last 2 days, so many people have visited and actively participate in reading through the posts, filling out the polls, emailing recommendations and comments to me. Today was busier than yesterday. Yesterday we had close to 30 new visitors, and today close to 60 visitors (some repeat visitors), and most returned at least once each day. About half participated in the polls, so I think that in addition to sufferers’ visit, there must also be family members, students, physicians, researches, and other non-sufferers.

The blog you’ve seen now is only the skeleton of what I envision it to be. It is going to be nipped and trimmed, and developed to bring this effort to much greater heights, but it is totally and completely dependent on the participation and commitment from both, sufferers and experts. I am so inspired to see the tremendous initial response, and I thank you all.

Maria (mpdela)


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