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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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Blog Archive

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Sunday, June 8, 2008

Phenylketonuria and Maple Syrup Urine disease. Recognised bloodborne odor problems

Main points :
From Merck manual
Other accepted bloodborne odors caused by errors in metabolizing certain amino acids
The main point : Can people with only mildly defective genes (or combos with 1 very bad copy, a null allelle) who are regarded 'asymptomatic' have a 'secret' transient odor problem ?

Phenylketonuria : mousy odor
Maple Syrup Urine Disease : sweet smell

Both Phenylketonuria and Maple Syrup Urine disease in their purest forms (and variations close to that) are serious life-threatening health problems that will be quickly diagnosed (that's how the medical system mostly discover health problems). But what about 'normal' 'carriers' or having one 'serious' copy and a combo with a mild defective copy and other variations ? Perhaps these people are 'asymptomatic' to their doctors, but they silently suffer from transient odor issues that they can't smell and doesn't affect their physical health.

Quotes from Merck manual :

"Untreated children often give off a "mousy" body and urine odor as a result of a by-product of phenylalanine (phenylacetic acid) in their urine and sweat."

Maple Syrup Urine Disease
" and the odor of maple syrup particularly during physical stress, such as infection or surgery."


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