Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, July 24, 2008

Carry Wilson autobiography : The foul body odor that almost killed me

body odor bookThis autobiography was self-published in 2007 by one of our very own TMAU sufferers, Carry Wilson. This testimonial is a very deep and candid account of her experiences with the social and emotional obstacles sufferers face on a daily basis. It clearly portrays the personal profound devastation these obstacles produce, and its impact on the sufferer’s family. Each page screams out the desperate need for research and a cure. Thank you Carry for bravely telling your story, helping to break down the stigma attached to this malady, and for representing us all in our plight!

Carry will be speaking on the inaugural Body Odor Support Forum Women’s Conference Call next Wednesday, July 30th at 8:00p.m. EST.

Plagued by a terrible odor that not only proved to be embarrassing but also made it difficult for her to hold a job and to provide for herself and her young daughter, Carry Wilson sought help from a number of physicians in various fields. Despite the indications of her own research, medical professionals repeatedly dismissed her concerns and assumed she suffered from a psychiatric disorder rather than a medical illness. Desperate, isolated, and depressed, she was hospitalized several times with suicidal ideations, a history that only seemed to make it more difficult to secure quality medical attention.

Use for a quick search using ISBN-10: B0010KDSTY

Author: Carry Wilson
Publisher: Dorrance Publishing Co., Inc.
Release Date: 2006

The book or Ebook is available from the publisher :

ISBN: 978-0-8059-7188-0

It is also available from Amazon and possibly elsewhere:


Post a Comment