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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, August 27, 2008

Women’s Conference Call tomorrow, August 27th at 8:00p.m.

Ladies, our next Women’s Conference Call is just around the corner, scheduled for Wednesday, August 27th at 8:00pm/EST, held under the direction of our warm and caring facilitator, Tisha. It will be an open forum, so feel free to bring up any topic, including the shared feelings and experiences expressed in our numerous poets’ poems or any other issue you may have in mind as we seek support and answers. These are some women’s issues that have come up in our forums these past two weeks that perhaps some of us would like to address:

• Our young members, tiffa93 and court290, starting the school year in the 10th grade this week have expressed their need for support and guidance to face this social situation with BO.

• Evrdrmn’s poem that portrays how BO touches the very core of our womanhood.

Not really a woman

I'm not really a woman
I'm just a thing
A thing that must survive
Simply because I happen to be alive

I'm not really a woman
I'm a human, of no gender or sex
I go from one rough wave
To the next and the next

I'm not really a woman
I'm just a vessel for a smell
A joy to be around
If you want to laugh like hell

I'm not really a woman
I'm not even a person
I just look like one

So don't smile at me
And please don't speak
I am not the one
You really want to seek.
Free USA-based phone conferences
Women's Conferences: normally every other Wednesday 8pm EST. Next call: August 27th at 8pm EST

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier

Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phoneline can be used anytime to talk to other sufferers
You don't need to talk. You can just listen


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