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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Thursday, September 11, 2008

Arun's invitation to the Thames Festival 2008 meet-up next Saturday & Sunday 12pm onwards, outside the Guoman Tower Hotel next to Tower Bridge

Hi guys, it’s Arun here.

I hope that many of you can make it to our group meet-up here in London next weekend, that’s the 13th and 14th of September 12p.m. onwards outside the downstairs cafe of the Guoman 'The Tower' Hotel, Tower Bridge, London. Both days the meet-up will be until around 5pm.

I’m expecting roughly 10 members in all. This will be an informal meet-up more like a coffee afternoon, really.

And we can chat about what test we have done, what diet and products we’ve tried, and which ones works. There’s no specific agenda and members can just chat or sit and listen depending on what they feel comfortable with.

The meet-up has been arranged to coincide with the Thames Festival 2008, which is on that whole weekend.

So for those who stay ‘till evening, there’ll be fireworks on the river, floats carnival, barbeque.

Call me on my landline for a chat if you like, and I’ll give you some more details.
That’s 01 375 484 269.

See you then, ciao, bye.

The group will sit under the blue umbrella all afternoon

Aruns MSN post in 2005 about a previous meetup and how usually sufferers cannot smell each other

I guess you will have also heard me mention that most of us are COMPLETELY unable to smell each other despite the range of odors present (sweaty odors, drain-pipe odors etc). Well, actually, 2 out of us 10 of us could but that is still a small percentage. Don't misunderstand me here guys...we can smell all odors perfectly apart from ours! We don't generally have a problem smelling odors!!!


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