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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Thursday, September 11, 2008

Join me on my trip to the Thames 2008 Festival Meet-Up!

As all of you know, I am traveling from Miami FL to London to attend Arun’s Thames Festival Meet-Up; and as most of you know, the goal of this blog is to unite sufferers of the various forums to come together to become a close community to empower us to find a cure. As I have said in my introductory post in this blog, “I would like all sufferers who visit and participate in this blog to be assured that I commit to doing everything in my power to protect your privacy and confidentiality throughout this process.”

Some sufferers have expressed to me that they experience a significant amount of social anxiety, and it holds them back from participating in meet-ups. Well, I was hoping to take my camera and take pictures (NOT OF ANY PERSON IN THE GROUP) to post them in my blog as I go along on the trip. In this manner, I can show everyone step-by-step what it’s all about. In fact, before I post any pics on the blog, I will ask someone in the group to ensure that no one was inadvertently included in the pics. By doing this project, everyone would share in our meet-up experience. I will also try to do an audio recording so that anyone in the group that wants can say something to the rest of the community in any of the posts.

I hope you all share in this journey with us. Hopefully, this will inspire more members to meet-up and feel good about ‘relaxing and chillin’ with other members throughout the world. Stay tuned for exciting events to come…

note :
no photos will be taken there without consent
no photos will appear here without consent

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