Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, November 11, 2008

Synopsis of Sunday's conference call by JMF

There were not that many on the call this passed Sunday. But numbers do not define success. The call went by so well. We discussed the upcoming May meet up and many were looking forward to it. There are many of us that have never met another like us. With this site we can respond to post and even have conference calls. However, the actual experience of meeting someone so much like yourself, in a world where you have felt an outcast for so long. That cannot be compared to anything else in the world. We discussed on many topics including Kristen's upcoming article. One person even asked advise, where she received more than enough options. But what i think was one of the most important things we discussed is the initiative we need to take to reach more of us who are out there, alone, suffering. Not knowing why they are the way they are and having no one to turn to. How can we reach theses people? We have grown to be a family. But now we must go out and look for those of us still orphaned. i think for our next conference call we should discuss ways to reach more of us. To not just get them to visit our site. But once they do visit, encourage and support them so they may be proactive. To want to be apart of things, because it passes the time. It gives us hope. And insight into the way we are. We have found this road to salvation. So we must not stay in the laps of hope alone. But we should spread that hope.


Post a Comment