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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Tuesday, November 11, 2008

Synopsis of Sunday's conference call by JMF

There were not that many on the call this passed Sunday. But numbers do not define success. The call went by so well. We discussed the upcoming May meet up and many were looking forward to it. There are many of us that have never met another like us. With this site we can respond to post and even have conference calls. However, the actual experience of meeting someone so much like yourself, in a world where you have felt an outcast for so long. That cannot be compared to anything else in the world. We discussed on many topics including Kristen's upcoming article. One person even asked advise, where she received more than enough options. But what i think was one of the most important things we discussed is the initiative we need to take to reach more of us who are out there, alone, suffering. Not knowing why they are the way they are and having no one to turn to. How can we reach theses people? We have grown to be a family. But now we must go out and look for those of us still orphaned. i think for our next conference call we should discuss ways to reach more of us. To not just get them to visit our site. But once they do visit, encourage and support them so they may be proactive. To want to be apart of things, because it passes the time. It gives us hope. And insight into the way we are. We have found this road to salvation. So we must not stay in the laps of hope alone. But we should spread that hope.


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