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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Tuesday, November 11, 2008

Synopsis of Sunday's conference call by JMF

There were not that many on the call this passed Sunday. But numbers do not define success. The call went by so well. We discussed the upcoming May meet up and many were looking forward to it. There are many of us that have never met another like us. With this site we can respond to post and even have conference calls. However, the actual experience of meeting someone so much like yourself, in a world where you have felt an outcast for so long. That cannot be compared to anything else in the world. We discussed on many topics including Kristen's upcoming article. One person even asked advise, where she received more than enough options. But what i think was one of the most important things we discussed is the initiative we need to take to reach more of us who are out there, alone, suffering. Not knowing why they are the way they are and having no one to turn to. How can we reach theses people? We have grown to be a family. But now we must go out and look for those of us still orphaned. i think for our next conference call we should discuss ways to reach more of us. To not just get them to visit our site. But once they do visit, encourage and support them so they may be proactive. To want to be apart of things, because it passes the time. It gives us hope. And insight into the way we are. We have found this road to salvation. So we must not stay in the laps of hope alone. But we should spread that hope.

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