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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Tuesday, December 23, 2008

101 ways to treat yourself

101 ways for a metabolic Body Odor / halitosis sufferer to treat themselves to boost their morale and make the life experience as good as possible whilst waiting for answers, and also help in searching for answers. It also gets us into the habit of thinking of ways to improve your situation and to thinking of ways out of 'dead end'

1: Use personal-development MP3s. Its better than nothing and your current thought pattern. They seem good enough for extremely rich athletes. Anything to get our spongy brains into a better pattern. How you are expected to react in situations can make a big change to tormentors psychology.
2: Treat yourself weekly/monthly that will be an 'improvement' (to you or your house or whatever). Even if it's something 'insignificant' (e.g. executive chair for sitting at the computer)
3: Go on some holiday once or twice a year
4: Express your feelings : write poetry to try and get in touch with yourself.
5: Focus on what you CAN do
6: List your fears/bad situations on a scale of 1 to 10 and focus on the least-scary ones first.
7: Have little meditation 'timeouts' throughout the day, even if it's just counting to 100. Say, after each meal. To get your mind back. Who owns your mind ?
8: Meet up with other metabolic/systemic/bloodborne body odor or halitosis sufferers. The evidence suggests those with 'internal' odors, especially fecal body odor, cannot smell each other. So you have nothing to fear in their company, and can be 'normal'

9: If you go to a (for example) psychologist, try a few out and decide which is best. If none, then try more. In most 'health' services, they get paid for failure (since it's often subjective and/or efficiency is hard to define). The rule in life seems to be, mediocrity is the best you can expect, poor quality is more likely, and usually the competent ones are much harder to find. So look out for the good ones. You deserve it. Same goes for any 'health' service, including doctors. The sports profession uses this attitude, all of them being very rich and healthy already. It's them being paid for the service, not you.
10: Get a pet
11: Watch a video/read a book/listen to an album each week
12: Download music from Amazon. DRM free
101: Make your own list. You will be amazed what ideas you come up with.

to be continued.

ps, not to be taken literally :)


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