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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, December 24, 2008

Personal development coach : cheap downloads on Amazon to try

You would think one of the aims of personal development practitioners would be not to exclude the poor from their skills, but like most health businesses on the mature internet, in practice it doesn't seem this way. No-one minds them being rewarded (?), but perhaps some 'lateral thinking' is needed, for a business model that is win/win (hotmail was bought by MSN with the intention of being a paid service, and then gmail came along and changed the business model... with ads). Some, like Paul McKenna, charge nothing for personal sessions, but his MP3s are pretty expensive. It is unknown how much profit they make from each sale and how rich they are, so the criticism may be due to lack of thought rather than intended.

Looking around the hypnotism/personal development download sites, their downloads seem expensive considering they are unknown, with almost no chance to know what you are buying (the websites and sales experience could be greatly improved if they wanted)

However, one 'coach' stands out as using the internet correctly to connect to the 'needy', for deciding to put his mp3s on sale on Amazon, for a very cheap price: Michael J Emery. He seems to practice NLP. His MP3s are about a $ each. many of them being 30+ minutes. This isn't to say his MP3s are effective (hopefully they are), but at that price everyone can try them at little loss ... including the poor. He also has a website (email needed, unfortunately) and puts videos on youtube

Michaels website :

Michaels youtube page

Note : The MP3s on his website seem very expensive, whereras the ones on Amazon are less than a $ each and look to be the same MP3s. Only buying from Amazon could be suggested.


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