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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, January 9, 2009

Dr Michael Phillips Breath test talk at Pittcon 2009 Chicago, March 10


Breath Tests for Detection of Disease

Facilitator: Dr. Michael Phillips, MD FACP MRCP(UK), Menssana Research Inc
Tuesday, March 10, 2009 1:30 to 3:30 AM
Room N427A

Breathalyzers seem a promising way of detecting both local halitosis, and bloodborne body odor/halitosis as well. This seems to be an area of research picking up, largely because it is thought they may be able to detect many serious health problems early through breath, and also it would be very practical in a frontline clinical setting (The Drs surgery). One pioneer is Dr Michael Phillips of Menssana Research, who had a dream of such of a device for testing. His company has built a breathalyzer that can detect volatile compounds at 'parts per trillion'. He will be talking at the Pittcon Conference in Chicago this year.
...This session will address the technical challenges of detecting volatile organic compounds excreted in the breath in picomolar concentrations (parts per trillion), the statistical challenges of extracting a disease signal from a noisy background, the clinical challenges of designing human studies that will yield clinically useful new diagnostic tests, and the regulatory and financial challenges of bringing these tests to the patient and the doctor.
Admission fee: The on-line registration price is $95 before February 9, 2009; $190 after.

It is posted in case anyone wants to go. He likely won't talk about halitosis. The Pittcon conference seems to be about spectrometers. Perhaps he will have a booth.
News video of Dr Phillips breathalyzer
Pittcon website


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