Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, January 18, 2009

Join our new forum especially created for our community

Kristen and Matt have so kindly created a fantastic new forum just for our community. We have yet to get our logo and name up on this site since it is still being designed, and Matt is still working on the fine tuning part to make it even better for us. Only a couple of months ago, MSN announced that all their MSN Groups service will close in February 2009. Arun Nagrath got us a 10-year subscription to our new site, and it will not have any advertisment on it. Matt and Kristen have dedicated endless hours creating it for us, and have done a extraordinary job. We don't want to wait until MSN closes its doors on us, we are migrating before they do. Please come and join us in this new site and check it out. Register and join our community to communicate and participate with us in future fundraising and research endeavors. We would love to hear from you. By registering, you will be coming to the right place where we offer you camaraderie, support, and where we learn from each other not only how to manage our body odor condition at a physical level, but also at an emotional and social level. Here we discuss what has worked for some to minimize or control our odor, but most importantly, we also work on building close ties of friendship to lift us from isolation. Everyone is welcomed, and everyone is special in his/her own unique way. So please feel free to participate in our forum, in our free phone conference calls, and research efforts, all announced in this new forum site and in this blog. Hope to see you at our new forum!


Post a Comment