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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Sunday, January 18, 2009

Join our new forum especially created for our community

Kristen and Matt have so kindly created a fantastic new forum just for our community. We have yet to get our logo and name up on this site since it is still being designed, and Matt is still working on the fine tuning part to make it even better for us. Only a couple of months ago, MSN announced that all their MSN Groups service will close in February 2009. Arun Nagrath got us a 10-year subscription to our new site, and it will not have any advertisment on it. Matt and Kristen have dedicated endless hours creating it for us, and have done a extraordinary job. We don't want to wait until MSN closes its doors on us, we are migrating before they do. Please come and join us in this new site and check it out. Register and join our community to communicate and participate with us in future fundraising and research endeavors. We would love to hear from you. By registering, you will be coming to the right place where we offer you camaraderie, support, and where we learn from each other not only how to manage our body odor condition at a physical level, but also at an emotional and social level. Here we discuss what has worked for some to minimize or control our odor, but most importantly, we also work on building close ties of friendship to lift us from isolation. Everyone is welcomed, and everyone is special in his/her own unique way. So please feel free to participate in our forum, in our free phone conference calls, and research efforts, all announced in this new forum site and in this blog. Hope to see you at our new forum!


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