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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Thursday, July 16, 2009

Mystery diagnosis episode about Trimethylaminuria featuring Cheryl Marshall and Dr Paul Fennessey

Someone has kindly uploaded the recent Mystery Diagnosis case about trimethylaminuria featuring Cheryl Marshall, who founded the NORD Trimethylaminuria Fund. It cannot be understated how grateful we are to Cheryl for bravely appearing on national TV, and for the person who uploaded it to youtube for enabling worldwide viewing of the episode. Thank you both very much.

Cheryl Marshalls fundraising site for the NORD TMAU Fund About the NORD Trimethylaminuria Fund : NORD (National Organization for Rare Disorders, Inc.) is a U.S. national charity that was formed in 1983 by the individuals and organizations who supported the Orphan Drug Act, an important piece of legislation that provides incentives to encourage the development of new treatments for rare disorders. A TMAU sufferer, Cheryl Marshall, set up the TMAU fund. The purpose of the fund is to collect donations that will be used solely towards research into TMAU. When the balance of the fund reaches $35,000 tax deductible contributions, the process of issuing a Request for Research Proposals from research scientists or investigators in the field of TMAU can begin; thus triggering further funding from NIH to set in motion an 'official' research. It is possible to donate online. NORD provides accurate, reliable information and is a strong voice in advocating for needed research and improved treatments. Every month NORD provides a running list of the funds along with the total amount donated in their UPDATE newsletter.
related links: see all youtube videos uploaded by Lillyput2

2 comments:

Anonymous said...

would someone please re-upload or relink to the mystery diagnosis on tmau ? =) We could really use it . THanks J =D

Apr 28, 2012, 2:10:00 PM
Maria de la T., Founder and Executive Director, MEBO Research said...

I wish we could, but as noted in this YouTube site, it have been removed by the user. MEBO have no control over this.

May 2, 2012, 8:24:00 AM
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