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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Thursday, July 16, 2009

Mystery diagnosis episode about Trimethylaminuria featuring Cheryl Marshall and Dr Paul Fennessey

Someone has kindly uploaded the recent Mystery Diagnosis case about trimethylaminuria featuring Cheryl Marshall, who founded the NORD Trimethylaminuria Fund. It cannot be understated how grateful we are to Cheryl for bravely appearing on national TV, and for the person who uploaded it to youtube for enabling worldwide viewing of the episode. Thank you both very much.

Cheryl Marshalls fundraising site for the NORD TMAU Fund About the NORD Trimethylaminuria Fund : NORD (National Organization for Rare Disorders, Inc.) is a U.S. national charity that was formed in 1983 by the individuals and organizations who supported the Orphan Drug Act, an important piece of legislation that provides incentives to encourage the development of new treatments for rare disorders. A TMAU sufferer, Cheryl Marshall, set up the TMAU fund. The purpose of the fund is to collect donations that will be used solely towards research into TMAU. When the balance of the fund reaches $35,000 tax deductible contributions, the process of issuing a Request for Research Proposals from research scientists or investigators in the field of TMAU can begin; thus triggering further funding from NIH to set in motion an 'official' research. It is possible to donate online. NORD provides accurate, reliable information and is a strong voice in advocating for needed research and improved treatments. Every month NORD provides a running list of the funds along with the total amount donated in their UPDATE newsletter.
related links: see all youtube videos uploaded by Lillyput2


Anonymous said...

would someone please re-upload or relink to the mystery diagnosis on tmau ? =) We could really use it . THanks J =D

Apr 28, 2012, 2:10:00 PM
Maria de la Torre, Founder and Executive Director, MEBO Research said...

I wish we could, but as noted in this YouTube site, it have been removed by the user. MEBO have no control over this.

May 2, 2012, 8:24:00 AM
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