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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Tuesday, August 11, 2009

Free genome testing by Trugenetics

UPDATE : The trugentics test does not look as comprehensive as first anticipated. It seems to only looks for variants, and so mutants likely will not be noted. Also , it only details variants associated with certain health conditions. This likely will not include TMAU. It's likely they do not test FMO3 at all
see terms and conditions

At the moment, the reasons for what is known on the forums as 'fecal body odor'(syndrome) is still undefined, but a genetic factor is suspected, with FMO3 being one of the main suspects.

DNA testing will in the long-term likely prove to be important both for individuals and the group.

Currently, a lab called Trugenetics is offering people the chance to test their whole genome (all of their DNA) for free. Presumably this is so they can build up a database which later on they can use to compare fee-paying samples etc.

How useful this will be to those with metabolic body odor cannot be predicted here; for instance we don't have a full understanding of what the results will actually mean (e.g. does the FMO3 info give the same info that the TMAU DNA test does ?).

Nevertheless, it is free, so it was thought worthy of mention. The lab is in Seattle and the samples are taken from saliva. Also be aware that it will likely show any predisposition for other illnessess perhaps, and so may be life-changing. It is mentioned here mainly as a potential shortcut for FMO3 DNA testing and perhaps may show info on other smell-associated enzymes too (such as Isovaleric acidemia).


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