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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, August 11, 2009

Free genome testing by Trugenetics

UPDATE : The trugentics test does not look as comprehensive as first anticipated. It seems to only looks for variants, and so mutants likely will not be noted. Also , it only details variants associated with certain health conditions. This likely will not include TMAU. It's likely they do not test FMO3 at all
see terms and conditions

At the moment, the reasons for what is known on the forums as 'fecal body odor'(syndrome) is still undefined, but a genetic factor is suspected, with FMO3 being one of the main suspects.

DNA testing will in the long-term likely prove to be important both for individuals and the group.

Currently, a lab called Trugenetics is offering people the chance to test their whole genome (all of their DNA) for free. Presumably this is so they can build up a database which later on they can use to compare fee-paying samples etc.

How useful this will be to those with metabolic body odor cannot be predicted here; for instance we don't have a full understanding of what the results will actually mean (e.g. does the FMO3 info give the same info that the TMAU DNA test does ?).

Nevertheless, it is free, so it was thought worthy of mention. The lab is in Seattle and the samples are taken from saliva. Also be aware that it will likely show any predisposition for other illnessess perhaps, and so may be life-changing. It is mentioned here mainly as a potential shortcut for FMO3 DNA testing and perhaps may show info on other smell-associated enzymes too (such as Isovaleric acidemia).


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