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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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EURORDIS and
NORD Member Organization
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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Tuesday, August 11, 2009

Free genome testing by Trugenetics

UPDATE : The trugentics test does not look as comprehensive as first anticipated. It seems to only looks for variants, and so mutants likely will not be noted. Also , it only details variants associated with certain health conditions. This likely will not include TMAU. It's likely they do not test FMO3 at all
see terms and conditions




http://www.trugenetics.com/

At the moment, the reasons for what is known on the forums as 'fecal body odor'(syndrome) is still undefined, but a genetic factor is suspected, with FMO3 being one of the main suspects.

DNA testing will in the long-term likely prove to be important both for individuals and the group.

Currently, a lab called Trugenetics is offering people the chance to test their whole genome (all of their DNA) for free. Presumably this is so they can build up a database which later on they can use to compare fee-paying samples etc.

How useful this will be to those with metabolic body odor cannot be predicted here; for instance we don't have a full understanding of what the results will actually mean (e.g. does the FMO3 info give the same info that the TMAU DNA test does ?).

Nevertheless, it is free, so it was thought worthy of mention. The lab is in Seattle and the samples are taken from saliva. Also be aware that it will likely show any predisposition for other illnessess perhaps, and so may be life-changing. It is mentioned here mainly as a potential shortcut for FMO3 DNA testing and perhaps may show info on other smell-associated enzymes too (such as Isovaleric acidemia).

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