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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, September 16, 2009

Arun talks about the Thames Festival 2009 Meet-up

Arun Nagrath, the founder and owner of, arranged the highly successful London Body Odor and Halitosis meetup this past weekend. It has come a long way since he set up the first such weekend (based around the annual Thames Festival) 5 years ago. Here is a video of Arun on the 2nd day of the meetup, with the following text being what Arun wrote about it on the forum
Hi guys, As some of you know, we had our Annual UK Meetup here in London last weekend. On Saturday, there were 20 members present and we met up at 12pm outside the Tower Hotel, next to Tower Bridge, London. The weather was surprisingly very sunny as we chatted under the umbrellas outside and had our drinks/ light snacks. We recalled our experiences, discussed what tests we had done and shared tips on what had helped us. Around 4pm we all walked across the bridge and sat down on the grassy area on the other side. Here we listened to the sound festival as we tucked into some of the international food from the stalls. We then headed over to Brown's Bar / Restaurant in Butler's Wharf where we sat until late and had drinks under the canopy. I left around 10.30pm but a few of us then walked along the embankment and started to party until as late as 6am! On Sunday, we again met outside the Guoman Tower Hotel and had our drinks/ light snacks. We then walked the short distance across the Marina to Dicken's Inn Bar/ Restaurant. We had a hearty meal and a drink there then walked back to the Tower Hotel. It was 5pm and the indoor bar upstairs had just opened. We sat inside and marvelled at the view as the bar had panoramic views of the river Thames and we could see Tower Bridge open to let the tall boats come through. At 10pm, a few of us came outside to watch the fireworks which were launched from a barge moored on the river. We exchanged contact details and hugged each other goodbye. It had been a magnificent event, with members also coming from America, Norway Spain and Scotland. I am hoping members who attended will be amongst the first to enter their details (tests/ diets/ products tried and their effect) in our Database/ Survey which I will be posting on all the Group sites VERY SOON. I will be posting the questionnaire to get your feedback on it to decide what further questions we need to ask in the Survey. Last year we had nearly 100 members enter their details in the survey! The new (final) survey is designed for more detail and will be freely accessible to scientists, medics and us all. It will be used to produce a treatment protocol for every type of odour condition. Arun


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