Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out
March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :
https://meboresearch.co.uk/index.php/living-with-tmau-lwtmau-study/

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Wednesday, September 16, 2009

Arun talks about the Thames Festival 2009 Meet-up

Arun Nagrath, the founder and owner of bodyodorsupport.com, arranged the highly successful London Body Odor and Halitosis meetup this past weekend. It has come a long way since he set up the first such weekend (based around the annual Thames Festival) 5 years ago. Here is a video of Arun on the 2nd day of the meetup, with the following text being what Arun wrote about it on the bodyodorsupport.com forum
Hi guys, As some of you know, we had our Annual UK Meetup here in London last weekend. On Saturday, there were 20 members present and we met up at 12pm outside the Tower Hotel, next to Tower Bridge, London. The weather was surprisingly very sunny as we chatted under the umbrellas outside and had our drinks/ light snacks. We recalled our experiences, discussed what tests we had done and shared tips on what had helped us. Around 4pm we all walked across the bridge and sat down on the grassy area on the other side. Here we listened to the sound festival as we tucked into some of the international food from the stalls. We then headed over to Brown's Bar / Restaurant in Butler's Wharf where we sat until late and had drinks under the canopy. I left around 10.30pm but a few of us then walked along the embankment and started to party until as late as 6am! On Sunday, we again met outside the Guoman Tower Hotel and had our drinks/ light snacks. We then walked the short distance across the Marina to Dicken's Inn Bar/ Restaurant. We had a hearty meal and a drink there then walked back to the Tower Hotel. It was 5pm and the indoor bar upstairs had just opened. We sat inside and marvelled at the view as the bar had panoramic views of the river Thames and we could see Tower Bridge open to let the tall boats come through. At 10pm, a few of us came outside to watch the fireworks which were launched from a barge moored on the river. We exchanged contact details and hugged each other goodbye. It had been a magnificent event, with members also coming from America, Norway Spain and Scotland. I am hoping members who attended will be amongst the first to enter their details (tests/ diets/ products tried and their effect) in our Database/ Survey which I will be posting on all the Group sites VERY SOON. I will be posting the questionnaire to get your feedback on it to decide what further questions we need to ask in the Survey. Last year we had nearly 100 members enter their details in the survey! The new (final) survey is designed for more detail and will be freely accessible to scientists, medics and us all. It will be used to produce a treatment protocol for every type of odour condition. Arun

0 comments:

Post a Comment