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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, September 23, 2009

Our anthology is accepted by a publisher has offered to publish our anthology. Richard tells us of this great news in a post in the Body Odor Support forum.

Hey Everybody!

I just received a call from that our anthology will be published! We don't have to pay a cent. They will pay US! The proceeds will go to research for better medical treatment for our condition and a cure. Congratulations to all who participated and to everyone else in the world who is just like us. People will know us now!

They will email me the contract to look over today (Sept. 22) or tomorrow. I will eventually post the entire contract for everyone to see. THIS IS A GREAT DAY for us!


The proceeds will go to research for better medical treatment for our condition and a cure.Thanks Richard for a job well done. None of this could have been done without all your extremely hard work and dedication. The whole community should feel VERY PROUD to have created such a masterful expression of life with our condition. As the saying goes, "When you get lemons, make lemonade".

I do believe that this is the first time that the BO community comes together to raise social awareness of our condition in such a beautiful literary work. The majority of the authors have been in 'hiding' and living in 'shame' but we came out in a very beautiful way to tell the world our story. We are talented people, sensitive people, BEAUTIFUL PEOPLE!!! And I'm proud to be a part of this!

Now, we can all cash in on it to raise funds for testing and research. What a wonderful reward - to promote our cause, to search for treatment and a cure in addition to raising social awareness. I do want to bring research to the US as well as in the UK, and this will help us accomplish it.

Thank you, thank you, thank you, Richard. God bless you abundantly!



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