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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Wednesday, September 23, 2009

Our anthology is accepted by a publisher

PublishAmerica.com has offered to publish our anthology. Richard tells us of this great news in a post in the Body Odor Support forum.

Hey Everybody!

I just received a call from PublishAmerica.com that our anthology will be published! We don't have to pay a cent. They will pay US! The proceeds will go to research for better medical treatment for our condition and a cure. Congratulations to all who participated and to everyone else in the world who is just like us. People will know us now!

They will email me the contract to look over today (Sept. 22) or tomorrow. I will eventually post the entire contract for everyone to see. THIS IS A GREAT DAY for us!

Rich


The proceeds will go to research for better medical treatment for our condition and a cure.Thanks Richard for a job well done. None of this could have been done without all your extremely hard work and dedication. The whole community should feel VERY PROUD to have created such a masterful expression of life with our condition. As the saying goes, "When you get lemons, make lemonade".

I do believe that this is the first time that the BO community comes together to raise social awareness of our condition in such a beautiful literary work. The majority of the authors have been in 'hiding' and living in 'shame' but we came out in a very beautiful way to tell the world our story. We are talented people, sensitive people, BEAUTIFUL PEOPLE!!! And I'm proud to be a part of this!

Now, we can all cash in on it to raise funds for testing and research. What a wonderful reward - to promote our cause, to search for treatment and a cure in addition to raising social awareness. I do want to bring research to the US as well as in the UK, and this will help us accomplish it.

Thank you, thank you, thank you, Richard. God bless you abundantly!

María

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