Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Labels

March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Tuesday, November 24, 2009

3rd tester's results in the MeBO-Biolab Gut Dysbiosis in systemic body odor and halitosis study

Results :
Tester 3
Gut FermentationEthanol raised, implying yeast small intestine overgrowth
Gut permeability raised for bigger sized molecules, implying 'leaky gut'
Indicans positive
D-lactate 2 (below 60 is normal)

MeBO Research is conducting a Gut Dysbiosis Study in relation to systemic body odor and halitosis, even though sufferers of any form of body odor and halitosis are also welcome to test, since currently all fees are paid by the person testing.

The 3rd tester's results have just been received and posted above.

About tester 3 : Tester 3 is a male in his early 30s, who feels he has a strong, slightly unusual odour in his armpits and groin area that he thinks is more fecal, although not totally sure. His groin / anal region has become the more prominent issue and these glands seem overactive. He feels anxiety levels affect his sweat glands, as heightened anxiety states increase his odour substantially. He has had this problem for 6 years and has not tested for trimethylaminuria. He has gut issues and feels he has food intolerances. Other health problems include a skin condition, allergies, chemical sensitivities and asthma. He feels fatigue, craves simple carbohydrates, and feels that probiotics help.

Results : The results of these tests showed positive for indicans, raised ethanol levels imply the presence of a mild yeast overgrowth, and an increased gut permeability at the larger range sized molecules (a condition termed as 'leaky gut'). His permeability result is interesting in that it starts borderline low for the smallest sized molecules and increases as it continually rises above the normal mark for the bigger sized molecules.

Remarks : It is interesting that tester 2 and 3 had raised ethanol levels, but tester 2 had raised D-lactate and negative indicans, whereas tester 3's D-lactate and indicans results were the opposite. Tester 1 did not have any obvious dysbiosis pattern from the tests in the study, and was the only one not to feel he had some sort of gut complaint.

About MeBO Research : MeBO Research is a sufferer-founded international campaign to research the causes, treatment, and cure of the various systemic body odor conditions. It is a non-profit, limited by guarantee Company registered in England aiming to become a charity with donations awarded by its members and volunteer fund raisers. Within only months of MeBO's inception, research was underway with the gracious contributions of volunteer testers, discounted testing rates, and pro-bono services by experts. Upon becoming a registered charity, MeBO Research will be in a better position to fund raise for large research grants and endowments in order to further its research efforts.

The MeBO-Biolab gut dysbiosis study is still open for anyone wishing to test. Biolab will now be accepting international applications for testing. Unfortunately, volunteers would need to pay his or own costs (a maximum of £146). It is aimed specifically at people with fecal/bowel smells body odor, but since the tester is paying, anyone with body odor or halitosis is welcome to test.



The form to test in MeBO-Biolab Gut Dysbiosis Study is here :
MeBO-Biolab gut dysbiosis in body odor or halitosis study form-REVISED

Donate to MeBO Research

What MeBO is doing

MeBO Research aims to become a charity focusing on systemic body odor and systemic sourced halitosis, particularly 'bowel smells' body door, since is the most common. Any donations are welcome to primarily reach MeBO's aim of charity status. As a charity, MeBO can then pursue grants and endowments in order to carry out large-scale international studies.

0 comments:

Post a Comment