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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, November 24, 2009

3rd tester's results in the MeBO-Biolab Gut Dysbiosis in systemic body odor and halitosis study

Results :
Tester 3
Gut FermentationEthanol raised, implying yeast small intestine overgrowth
Gut permeability raised for bigger sized molecules, implying 'leaky gut'
Indicans positive
D-lactate 2 (below 60 is normal)

MeBO Research is conducting a Gut Dysbiosis Study in relation to systemic body odor and halitosis, even though sufferers of any form of body odor and halitosis are also welcome to test, since currently all fees are paid by the person testing.

The 3rd tester's results have just been received and posted above.

About tester 3 : Tester 3 is a male in his early 30s, who feels he has a strong, slightly unusual odour in his armpits and groin area that he thinks is more fecal, although not totally sure. His groin / anal region has become the more prominent issue and these glands seem overactive. He feels anxiety levels affect his sweat glands, as heightened anxiety states increase his odour substantially. He has had this problem for 6 years and has not tested for trimethylaminuria. He has gut issues and feels he has food intolerances. Other health problems include a skin condition, allergies, chemical sensitivities and asthma. He feels fatigue, craves simple carbohydrates, and feels that probiotics help.

Results : The results of these tests showed positive for indicans, raised ethanol levels imply the presence of a mild yeast overgrowth, and an increased gut permeability at the larger range sized molecules (a condition termed as 'leaky gut'). His permeability result is interesting in that it starts borderline low for the smallest sized molecules and increases as it continually rises above the normal mark for the bigger sized molecules.

Remarks : It is interesting that tester 2 and 3 had raised ethanol levels, but tester 2 had raised D-lactate and negative indicans, whereas tester 3's D-lactate and indicans results were the opposite. Tester 1 did not have any obvious dysbiosis pattern from the tests in the study, and was the only one not to feel he had some sort of gut complaint.

About MeBO Research : MeBO Research is a sufferer-founded international campaign to research the causes, treatment, and cure of the various systemic body odor conditions. It is a non-profit, limited by guarantee Company registered in England aiming to become a charity with donations awarded by its members and volunteer fund raisers. Within only months of MeBO's inception, research was underway with the gracious contributions of volunteer testers, discounted testing rates, and pro-bono services by experts. Upon becoming a registered charity, MeBO Research will be in a better position to fund raise for large research grants and endowments in order to further its research efforts.

The MeBO-Biolab gut dysbiosis study is still open for anyone wishing to test. Biolab will now be accepting international applications for testing. Unfortunately, volunteers would need to pay his or own costs (a maximum of £146). It is aimed specifically at people with fecal/bowel smells body odor, but since the tester is paying, anyone with body odor or halitosis is welcome to test.

The form to test in MeBO-Biolab Gut Dysbiosis Study is here :
MeBO-Biolab gut dysbiosis in body odor or halitosis study form-REVISED

Donate to MeBO Research

What MeBO is doing

MeBO Research aims to become a charity focusing on systemic body odor and systemic sourced halitosis, particularly 'bowel smells' body door, since is the most common. Any donations are welcome to primarily reach MeBO's aim of charity status. As a charity, MeBO can then pursue grants and endowments in order to carry out large-scale international studies.


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