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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, December 17, 2009

dogs sniff diabetics

TMAU sensor option:
Electronic nose
TMA urine paper
Trained pet
One of the most frustrating factors of systemic body odors is that normally neither the sufferer nor 'loved ones' can smell the person, and presumably most with the syndrome are transient sufferers (otherwise doctors wouldn't think you were crazy). It has been speculated here before about the ways that the community could come up with a 'detector' they could use to monitor their problem. The 2 main options probably come down to an electronic nose (the ideal solution) or a 'trained pet'. Electronic noses may be not be yet up to a standard for this problem (or at least, no-one is making one for systemic body odors). Regarding a trained pet, it is known that dogs are being trained to detect cancers and diabetes, so it would seem possible that a pet could be trained for trimethylaminuria.

This article gives the background of the work at the Cancer and Bio-Detection Dogs research center in Aylesbury, southern England are training dogs to detect cancers and diabetes (and presumably other bio disorders as funds improve). Presumably such work is going on in other places too. Probably for TMAU, a cat would be best (a barking dog would not seem a good way to tell a patient they are smelling).

Dogs trained to sniff diabetes


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