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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, December 19, 2009

Tester #4 results: MeBO-Biolab Gut Dysbiosis Study

Tester 4
Mid 30's
Odor problem:
Systemic body odor for over 10 years. Feels he has rectal odor
Gut problems
Bloating, Diarrhea, Gas, Undigested food in stools, Pale coloured stools
Other problems
Psoriasis, Chronic Fatigue Syndrome (CFS), Irritable Bowel Syndrome
Trimethylaminurianot tested
Results :
Tester 4
Gut FermentationNormal for ethanol (yeast). 2 methyl 1 proponal is raised but no comment is made by the laboratory
Gut permeability highly raised for medium sized molecules, implying 'leaky gut'
Indicans Negative
D-lactate 2 (normal is below 60)

The results are back for our 4th tester in the MeBO-Biolab gut dysbiosis study. A male in his mid 30s who has had his odor problem for over 10 years. He feel it is systemic but writes that he also suffer from rectal odor. He has a number of other health problems such as gut issues, and Irritable Bowel Syndrome (IBS) and Chronic Fatigue Syndrome (CFS) as well as psoriasis.

body odor test resultsThe results came back mostly normal apart from the gut permeability test, which was extremely 'over-absorbing' around the mid-range of the molecules taken, meaning leaky gut.

Tests done:
Gut fermentation test £46
Gut permeability test £75
Indicans urine test £13
D-lactate blood test £12
MeBO Research-Biolab body odor gut dysbiosis study
The study is using 4 tests from Biolabs range of tests to look at various areas of gut dysbiosis in those with systemic body odor (mainly fecal body odor) or systemic halitosis. Since MeBO is new and has little funds, each tester has to pay for the tests. Those overseas can also participate providing they can return the samples within 48 hours of collection. The application survey is here : MeBO-Biolab body odor gut dysbiosis study form

Donate to MeBO Research

What MeBO is doing

Raised: £530/$862
Contribution to Study: £125/$203
Current balance: £405/$658
updated 11Dec09
About MeBO Research : MeBO Research is a recently started patient-advocacy group looking to stimulate research and help into systemic body odors and systemic halitosis in any way possible. It aims to become a charity when funds allow.


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