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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, February 8, 2010

MeBO Research First Year Anniversary : February 5th, 2010

February 5, 2010 saw the first anniversary of MEBO Research, registered in England and Wales as a limited non-profit company. It hopes to become a charity, and it would need £5000 in assets to register as a charity in England. MeBO sees itself as a patient advocacy group on behalf of systemic body odor sufferers particularly by raising awareness and promoting research.

It has been a busy year in 2009, getting the paperwork done correctly to establish this nonprofit organization. Nevertheless, it was deemed important to get the first 'special forces' study going, and this was started with the help of Biolab Medical Unit in London. The MeBO-Biolab Gut Dysbiosis Study was begun, with the volunteers kindly paying for their own tests. So far 5 results have been returned with more pending, and more volunteers applying to be tested. Part of the objective of this study is to encourage professional researchers to take a note of the results and perhaps give them ideas for research, as well as the study being useful in itself to each volunteer and other members of our community as patterns emerge from the results.

For the 2nd year, MeBO switched to a new 'official address' for £47 (per year), since the old one was more costly. Last year, Maria paid £89 from her own money for the address, but the renewal for the year 2010 for £47 was paid with the funds donated by the community, for which we are very grateful. A yearly address is needed to keep the company in proper legal standings.

Old address (2009):
Minshull House
Stockport, SK4 2LP
United Kingdom
MEBO Research's new address is:
145-157 St. John StreetLondon EC1V 4PY
UK 0800 0588015 / US 786 228-6880

So far £530/$862 has been raised, for which we are very grateful. One of the aims in 2010 is to reach £5000 goal to become a charity and hopefully register in the U.S. as well. However, if community opportunities arise, it may be deemed important to fund MeBO's causes too, as we invested £125 in the MEBO-Biolab Gut Dysbiosis Study, and an additional £902 needed to cover the cost of these tests were donated by the 5 volunteers for their own respective tests.

Donations will also be used for the upcoming International Body Odor and Halitosis Webinar Series, which will benefit the whole community for a long time to come; it will be free of charge to up to 1,000 attendees worldwide during each presentation. This webinar will cost MeBO £100 a month for the duration of the Series.

The more funds raised, the longer we can receive valuable presentations from the experts and thus increase our opportunity to fund raise for research grants and to raise awareness and understanding of our condition.
Your donations would be greatly appreciated by the whole community.

María de la Torre

Donate to MeBO Research

Or go to your account and send as 'gift' to


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