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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :
https://meboresearch.co.uk/index.php/living-with-tmau-lwtmau-study/

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Saturday, February 6, 2010

Nashville 2010 Meet-up: deadline for hotel booking

Nashville Body Odor & halitosis meetup March 2010A friendly reminder for those interested in attending our meetup, you have only 21 more days to book a suite at the Embassy Suites Nashville Airport Hotel for the March 20th and 21st weekend. On March 1st, those suites not reserved will go back into the hotel inventory, and will then be offered at a higher rate to the general public.

The MEBO Research rate is $99/night for either a two double-bed room or a king-bed room, including a full daily breakfast, 2-hours daily Manager's reception, and airport shuttle service per person.

If you haven't booked your suite yet, or have booked it at a higher rate, you can change it to the MEBO Research rate by giving the following special account code:

Group/Convention Code: MBR

This rate is available for up to 20 suites on the 19th 20th and 21st of March, and is extended, subject to availability, two days before and two days after as well.

So far, approximately 20+ people have booked to attend from all over the country and from London.

WHY DO WE MEET-UP?



The USA community is ready to experience the transformation that comes with the special bond created with a 'pilgrimage' to a meetup. As Arun Nagrath tells us in his video recorded during the London, Thames 2009 Body Odor & Halitosis meetup (see video in right sidebar),

...we had discussions, very intriguing, intellectual discussions, very spiritual discussions, and very emotive discussions that really touch the heart that made you realize and feel as if you were actually looking into a mirror and talking to someone whose experiences have been exactly what you've been going through. And it was so touching inside...we started to bond, and I can see those feelings of depression, of anxiety, of hopelessness, just fade away, and I can actually see a sense of utter calmness in their voice in their appearance - all this in the space of one day...as if we've been through some kind of magical emotional healing experience...

Everyone from around the globe is invited to experience with us our Southern style reunion in our first Annual Body Odor and Halitosis USA Meetup in Nashville, Tennessee.


Nashville meetup 2010 : are you interested in attending ?


Accomodation preference

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