TMAU Awareness Day : 28th February

Sunday is International Rare Diseases Day, and the good people at rrr-tmau.org have taken the initiative to make it also a Trimethylaminura Awareness Day, including the option to donate to the NORD TMAU Fund. They are going to see how many they can get to donate to the fund and NORD will tell them the total. NORD does not disclose any personal information to rrr-tmau.org, so they do not know who donates unless you wish to disclose to them. Any contribution is welcome, from $1 to as much as you like. The goal is to reach $30000 by October, in which case NORD will then make invitations for the money as a grant for research. Cheryl Marshall has recently written more about the day and fund in the yahoo TMAU forum

Every penny counts- 1's, 5's, 10's whatever one can contribute adds up-please do not be shy about giving what you can.

NORD will tally the total dollar amount-I' m sure they may even be able to count the number of people who contributed as well- I will ask them for both numbers.

Much like the regular donation NORD NEVER reveals the names of the donors-We NEVER know who donates unless they reveal themselves. That is why I tell people that if they are donating and they want me to follow with NORD to make their donations are received they must tell me so when I call NORD I will have a name to ask for. Again let me say we will never know who the donors are.

Donations are accepted ANYTIME - it would be nice if we could get a large total for the 28th but if someone is unable to donate on that day - not a problem - send it later in the week. http://health.groups.yahoo.com/group/Trimethylaminuria/message/3540

Cheryl