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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, February 5, 2010

TMAU day : 28th February

Rare Disease Day US: Alone we are Rare. Together we are Strong.
The RRR campaign managers are joining NORD and celebrating the International Day for Rare Diseases on Sunday, February 28, 2010. We are also declaring Sunday February 28, 2010 as the first ever: International Trimethylaminuria (TMAU) Awareness Day and International medical malodors Awareness Day. We are joined by the TMAU community and our supporters: MEBO Research The Trimethylaminuria Foundation The NY/NJ/CT TMAU support Group The Trimethylaminuria Yahoo support group If you have TMAU, suspect you do or are a supporter of someone who does, join us in raising awareness and funds for meaningful research proposals through our established TMAU Research Fund at NORD. As a community, as of January 14th we have raised $9585.00. We set out on October 1, 2009 to reach a goal of $30,000 in 1 year to jump start some meaningful TMAU research work and we are proud to say that we are on our way there. February 28th is a great day to push forward. To participate on this day, please make any donation amount you or your supporters can give. (Even if it is a dollar!) It will be exciting to see how many people we can get involved in this process! NORD will give us the total of all donations made online that day as well as checks mailed in the week prior and following. More exciting, NORD will give us the total amount of people that donate that day! As the NORD slogan states, “Alone we are Rare. Together we are strong.” ITD will be a day in which we can all reflect on the struggles and the victories that we, both individually and as a community face. Let this year serve as the benchmark so that in future years we can have a point of reference of how far we have come. How many people can we ask to support us in our effort to get research started for TMAU! To Donate online: •Go to •Click on Donate Now •Enter donation amount or choose other amount •Under “In Honor of,” please type the following for rare Disorders” TMAU Restricted Research Fund •Click on View cart, Checkout. Then proceed to checkout. •Please type on your address and billing info and click “Checkout” •NORD will mail you a letter confirming your donation to the TMAU Research Fund which can be used for tax deduction purposes in the U.S. Mail to: •Write a check with your chosen amount to “National Organization for rare Disorders” • Under memo write “TMAU Restricted Research Fund.” • Mail check to NORD 55 Kenosia Avenue PO BOX 1968 Danbury, CT 06813-1968 For more info. Please go to


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