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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, March 17, 2010

Heading for Kentucky tomorrow then Nashville

International Body Odor & Halitosis informal webinar.
Live from Nashville 11am Central Time
Saturday, 20 March
Howdy y'awl. As you know, I will be in Nashville on Friday evening for the inaugural Grand Body Odor & Halitosis USA meetup at Embassy Suites Nashville Airport. All are welcome to attend. We are expecting around 20. We will be having an informal online webinar on Saturday at 11am Nashville time (Central Time), which you can all attend or watch, and then head out for a nice meal in the afternoon. The rest of the weekend can be decided spontaneously.

There will be samples of body odor and halitosis products donated by manufacturers, such as Jarrow Formula probiotics, Dr. Mist deoderant, Orabrush tongue scrapers, Garden of Life Probiotic Smile (for halitosis), Urea 42% Cloths (for foot care), and other goodies. MEBO Research is not endorsing any particular product, but rather these companies have supplied us with these samples asking us for feedback. There will be handouts, including a six-page paper Nigel Manning, Principal Clinical Scientist, Dept. Clinical Chemistry, Sheffield Children's Hospital, England, wrote for our meetup. Other handouts will give links to professional articles and papers on TMAU, halitosis, hyperhidrosis and bromhidrosis (a presentation on this topic may be given) as well as reference to organization specializing in one or more of these topics.

I am happy to announce that I will be leaving Thursday morning and heading for Frankfort, Kentucky, to see our future TMAU Service Dog, based at Pawsibilities Unleashed, to talk to the trainer, Liz Norris. She has kindly said we can bring the pup to Nashville! She hasn't begun TMAU training yet, but is trained to be around people.

I will keep you updated on the blog with my Palm Pre cell phone, as the days go by.

In the meantime I present the obligatory pre-meetup inspiration movie, to get us all in Nashville mode. Enjoy!

Informal webinar link :
Current Nashville time


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