Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, March 19, 2010

At Pawsibilities Unleashed in Frankfort Kentucky to see our TMAU service puppy

vallie tmau dog
Liz Norris is preparing Vallie for us to take her to the meetup in Nashville for the weekend. Liz spent so much of her valuable time teaching us how to handle and train Vallie, along with the harness, Service Dog bags and official SD documents, food, treats, toy and literature, including pictures and writeups of Vallie's prize winning extended family.

Vallie is a very happy energetic puppy who LOVES to train with Liz (and now with us), and want to keep on doing it even after Liz stops. Liz and Vallie gave us a demonstration on the training technique utilizing a treadmill to teach Vallie how to walk on a moving sidewalk. They also showed us how she works in tunnels and slides for find and rescue jobs, and to play with children on a slide. Vallie kept returning to the tunnels and slide even after the training session ended. SHE LOVES IT!

I was so discretely moved to tears with Vallie's beauty and potential for our community. Vallie noticed because of the scent of odorous compounds in tears, and she stopped what she was doing and came over to me to give me some love and to cheer me up! Talking about a Mental Health Service Dog! This came spontaneously from within her! It was an innate nurturing response to sadness, depression, happiness, and joy all bundled up together into a swelling tear in each of my eyes. WE NEED HER SO MUCH! We need many more like her too.

Vallie was naturally drawn to a specific body odor emitted from one of us. We noticed and Liz confirmed it without us having asked. Liz says that when a dog detects an odor, it doesn't matter whether it is detected by others or by scientific equipment - THE ODOR IS PRESENT! The dogs don't ever mistake this. A scent is a scent, is a scent, not to be confused by any other scent or denied, as it is real because the dog detected it. A trained service dog can be of great research and diagnostic assistance.

Vallie was naturally attracted to a scent I could not detect
Tomorrow we bring Vallie to our meetup. Let's see what she discovers in us at all levels, physically and emotionally. AND SHE'S ONLY 4 MONTHS OLD! Imagine when she's one year old, two years old, etc.

to be continued tomorrow...
Maria and Vallie

-- Sent from my Palm Pre


Post a Comment