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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, March 6, 2010

MeBO accepted in FIU Legal Clinic for entity formation as 501(c)3 non-profit org in US

I am happy to announce that MeBO Research has been accepted by the Legal Clinic Program of the College of Law of my Alma Mater, Florida International University, for pro-bono legal representation. They will advise us on how to best form an entity in the US with ties to MEBO Research, Limited by Guarantee Company registered in England, sharing the same mission. Under the supervision of faculty who are experienced legal practitioners, the program will represent us in registering MeBO, first as a company, and then as a 501(c)3 non-profit organization, so that we can proceed to pursue grants from renown Foundations to support research and treatment of TMAU, other FMO3 deficiencies and other metabolic causes of body odor, the genetics of body odor conditions, microbial causes of systemic odor (including but not limited to the digestive tract), diagnostic and therapeutic (odor management and mental health) possibilities including but not limited to the use of Medical Alert Service Dogs, and other such causes. John Little, Attorney at Law, Adjunct Clinical Professor, will be the supervising attorney for our case.

After finalizing the formation of this 501(c)3 non-profit organization in the US, I will then apply to the FIU College of Business Clinic to see if they will also assist us pro-bono in the grant-writing process so that we may do so in a professional and effective manner. I will also apply for assistance in setting up reliable and accurate accounting practices, as we work with multiple currencies from multiple countries. It is MeBO’s goal not only to effectively meet all the legal federal tax filing requirements of both countries, the United States and England, but to also set up a transparent accounting system as feasibly possible, so that all members and grantors can see where the funds are being disbursed.

The Community Development Clinic at Florida International University in Miami, Florida is an interdisciplinary program that provides their clients with legal and business assistance as needed to become a nonprofit organization and to operate it effectively. All of us at MeBO Research are most appreciative of the FIU Community Development Clinic reaching out to the community to help non-profit groups who are often unrepresented because of the high cost of legal services.
This $800 filing fee should generate a good return on investment, as it is the only way MeBO Research will have the leverage to receive tax-deductible grants from Foundations, since according to their respective by-laws, most can only give to 501(c)3 non-profit organizations.
The initial filing fee is almost $100 to register MeBO Research as a company, which should be initiated within a month. Afterwards, it will cost approximately $800 to file for a 501(c)3 non-profit status, a process that will probably begin in August 2010. This $800 filing fee should generate a good return on investment, as it is the only way MeBO Research will have the leverage needed to receive tax-deductible grants from Foundations, since according to their respective by-laws, most can only give grants to 501(c)3 non-profit organizations. Anyone wishing to do so may donate by clicking on the ‘Donate’ button on the sidebar of this blog or on the MEBO website.

María de la Torre
President and Executive Director
MEBO Research



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