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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, March 8, 2010

Medical Alert Service Dog Training

Pawsibilities Unleashed, Pet Therapy of Kentucky is a 501(c)3 non-profit organization completely run by volunteers and dependent upon donations. They do not use any “train by pain” methods like choke chains or pinch collars. Instead, they use the clicker training method. Their methods are proven in the show ring, at home and for assistance dog skills like seizure detection and diabetic alert.

Pictures and videos provided by Pawsibilities include the following:
  • Diabetes Medical Alert Service Dogs works off three different odor levels, and alerts her handler when there is a low sugar level, normal level, and a high sugar level.
  • Epilepsy Alert SD alerts child’s family to oncoming seizures up to 30 minutes in advance for some of the larger seizures - Dravet Syndrome
  • Medical Alert Service Dog trained to alert to high and low mood swings for Bi-Polar Depression

The same technique, based on odor variances, would work with TMA or any other odorous compound emitted by a body odor/halitosis sufferer. These Service Dogs could be used for the daily benefit of a specific sufferer and/or assisting in diagnostic process, especially in the case of not yet understood odors that modern medicine has not diagnosed.

How clicker dog training Works:

This video shows how a Service Dog is trained with a clicker. Founder, Liz Norris Here’s Liz Norris, Master Trainer and AKC-CGC Instructor, and Therapy Evaluator of Pawsibilities Unleashed working with a 10 month old Weimie. Liz is teaching the dog to go out over an object and touch a target then come back over a jump and target to your hand. The Weimie got this in just an hour of clicker work.

Share time in class video:
SDs are also taught to share; everyone shares the treats that are left over at the end of class and learn to not be food aggressive, but to share instead.


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