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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, April 2, 2010

MeBO-Biolab gut dysbiosis study : tester 5 organic acid result back

Tester 5 was our 'thorough' tester, who did a greater number of tests than the standard MeBO-Biolab gut dysbiosis study, in the hope of shining some more light on the problem of systemic body odors. Her full list of results can be seen in a previous post.

It took longer than anticipated to get her organic acid test result back, but it seems to show no obvious issues. The organic acid test chosen was not as thorough as we would have liked, but factors such as cost and accessibility played a big part. Our ideal starting point for testing would be a urine test looking for 'malodorous volatile organic compounds', but we have not found a source for this test. Also a DNA test of all the xenobiotic metabolizing enzymes (including FMO3) would seem appropriate, but this would be quite expensive.

The test included 3-hydroxy-isovaleric acid, which can be an indicator for biotin deficiency and has been reported as being high in systemic body odor cases anecdotally.

Anyone wishing to participate in the MeBO-Biolab gut dysbiosis study can do so by filling out the questionaire. It would cost you £170 to do all 5 tests. The tests chosen were to look at certain gut dysbiosis markers, as well as Vitamin B2 levels (B2 is a cofactor in proper FMO3 function). The tests should be seen as a starting point in looking for answers to systemic body odors. Of particular interest is the 'ethanol' test, which is regarded as a test of yeast gut overgrowth. So far, quite a few of our testers have been positive for this.


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