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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, April 3, 2010

Samples of BO/Halitosis products donated to the Nashville Meetup

Prior to the Nashville Meetup, I had written to various manufacturers of body odor/halitosis products asking them for samples that we could pass out in the meetup. Some manufacturers offered to send them asking that we give them feedback on their product. MeBO Research is not endorsing any product in particular; we are actually interested in seeing whether they do help with BO/halitosis, and would like to receive feedback from anyone who has ever tried any of these products.

I would like to ask anyone who has ever tried any of these products to please give us feedback so that I can forward them to the manufacturers.
To be fair and to be helpful to others who may want to try these products, it would be helpful to note whether they have been tried when the odor was totally out of control, intermittent, or pretty much controlled. Many of us are aware of the fact that there may frequently be multiple factors producing our odor, including metabolic odors. However, these products target non-metabolic causes that may also be contributing to our odor. The effectiveness (or the lack thereof) of the intended effects of these products is the feedback we’re looking for.

Here’s a list of products:

  1. Jarrow Formulas Enhanced Probiotic System, Jarro-Dophilus EPS: This manufacturer sent us so many samples, that the person from London took some of the samples to pass out to those attending the meetup in May in London in a sign of solidarity from the US.
  2. Garden of Life Probiotic Smile: Probiotic Mints for Complete Oral Care and Beautiful Smile: Each box comes with 60 chewable probiotic mints.
  3. Dr. Mist Body Hygiene Deodorant Spray: (I saw some meetup attendees using this right away during the meetup)
  4. Orabrush Tongue Cleaner: A tongue cleaner that has a brush at the tip mailed to us from Dr. Robert Wagstaff.
  5. Handouts given out during the meetup, see following links:
A folder with information and brochures was available for viewing on the Florida International University's Community Development Law Clinic that is offering MEBO Research legal services to register initially as a Company in the United States, and in August as a 501(c)3 non-profit organization.

My personal feedback on the sample products:

Jarrow Formulas Enahnced Probiotic System, Jarro-Dophilus EPS:
My son has been using this product for the past 2 years as part of his whole TMAU odor-management protocol with great success. For the first time in his life, his abdomen is no longer distended and tender, and during these two years, his odor has been gradually and now completely controlled. My other son and I use it periodically whenever our odor increases or when we've eaten the wrong foods, and it has always helped. I have tried other brands of probiotics and some have caused bloating and made me gassy, and I always end up coming back to this brand.

I must say that Jarrow gave us a very large amount of samples, and after all of us had a substantial amount to try to for some time, I gave our London attendee some samples to share with our British friends in their next meetup in May in a sign of solidarity. We'll see how they like this product.

Garden of Life Probiotic Smile:
For the first ever, me and my sons used this AND HAVE FALLEN IN LOVE WITH IT! It's important to note that it will not do a thing for alveolar breath, so if we've broken our diet and the breath is bad, it won't work miracles. However, if our odor is somewhat controlled, and we eat a meal that may have a bit of a strong odor (full of spices, of sulfur based foods), then the probiotic mint helps. It's also a confidence builder because it really does have a minty fresh feel and taste to it.

The Orabrush tongue tongue cleaner was a very popular item in the meetup, and in the end, there was none left for me, but that's alright. I'm glad everyone got one, and I hope it helps them. Please give me feedback on this product if you've tried it so that I can pass it on to the manufacturer.

The same happened with Dr. Mist Body Hygiene Deodorant Spray...I never got one. So, feedback on this product would also be appreciated.

I am looking forward to getting feedback from everyone who has ever tried any of these products. You may email me with your comments at . I will forward your comment with a pseudonym if you prefer anonymity.


As you can imagine, there were no products left over.


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