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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Upcoming get-togethers


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Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Saturday, April 3, 2010

Samples of BO/Halitosis products donated to the Nashville Meetup

Prior to the Nashville Meetup, I had written to various manufacturers of body odor/halitosis products asking them for samples that we could pass out in the meetup. Some manufacturers offered to send them asking that we give them feedback on their product. MeBO Research is not endorsing any product in particular; we are actually interested in seeing whether they do help with BO/halitosis, and would like to receive feedback from anyone who has ever tried any of these products.

I would like to ask anyone who has ever tried any of these products to please give us feedback so that I can forward them to the manufacturers.
To be fair and to be helpful to others who may want to try these products, it would be helpful to note whether they have been tried when the odor was totally out of control, intermittent, or pretty much controlled. Many of us are aware of the fact that there may frequently be multiple factors producing our odor, including metabolic odors. However, these products target non-metabolic causes that may also be contributing to our odor. The effectiveness (or the lack thereof) of the intended effects of these products is the feedback we’re looking for.

Here’s a list of products:

  1. Jarrow Formulas Enhanced Probiotic System, Jarro-Dophilus EPS: This manufacturer sent us so many samples, that the person from London took some of the samples to pass out to those attending the meetup in May in London in a sign of solidarity from the US.
  2. Garden of Life Probiotic Smile: Probiotic Mints for Complete Oral Care and Beautiful Smile: Each box comes with 60 chewable probiotic mints.
  3. Dr. Mist Body Hygiene Deodorant Spray: (I saw some meetup attendees using this right away during the meetup)
  4. Orabrush Tongue Cleaner: A tongue cleaner that has a brush at the tip mailed to us from Dr. Robert Wagstaff.
  5. Handouts given out during the meetup, see following links:
A folder with information and brochures was available for viewing on the Florida International University's Community Development Law Clinic that is offering MEBO Research legal services to register initially as a Company in the United States, and in August as a 501(c)3 non-profit organization.

My personal feedback on the sample products:

Jarrow Formulas Enahnced Probiotic System, Jarro-Dophilus EPS:
My son has been using this product for the past 2 years as part of his whole TMAU odor-management protocol with great success. For the first time in his life, his abdomen is no longer distended and tender, and during these two years, his odor has been gradually and now completely controlled. My other son and I use it periodically whenever our odor increases or when we've eaten the wrong foods, and it has always helped. I have tried other brands of probiotics and some have caused bloating and made me gassy, and I always end up coming back to this brand.

I must say that Jarrow gave us a very large amount of samples, and after all of us had a substantial amount to try to for some time, I gave our London attendee some samples to share with our British friends in their next meetup in May in a sign of solidarity. We'll see how they like this product.


Garden of Life Probiotic Smile:
For the first ever, me and my sons used this AND HAVE FALLEN IN LOVE WITH IT! It's important to note that it will not do a thing for alveolar breath, so if we've broken our diet and the breath is bad, it won't work miracles. However, if our odor is somewhat controlled, and we eat a meal that may have a bit of a strong odor (full of spices, of sulfur based foods), then the probiotic mint helps. It's also a confidence builder because it really does have a minty fresh feel and taste to it.


The Orabrush tongue tongue cleaner was a very popular item in the meetup, and in the end, there was none left for me, but that's alright. I'm glad everyone got one, and I hope it helps them. Please give me feedback on this product if you've tried it so that I can pass it on to the manufacturer.

The same happened with Dr. Mist Body Hygiene Deodorant Spray...I never got one. So, feedback on this product would also be appreciated.

I am looking forward to getting feedback from everyone who has ever tried any of these products. You may email me with your comments at maria.delatorre@meboresearch.com . I will forward your comment with a pseudonym if you prefer anonymity.

María

As you can imagine, there were no products left over.

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