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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, August 13, 2010

1975 Science paper : 7% could not smell trimethylamine

With a systemic body odor problem, including TMAU, it is quite common for the person and their 'loved ones' (e.g. parents, partner, children) to be unable to smell the odor. Speculation as to why this would be varies in the community. Some feel that those close to the person become acclimatized and desensitized to the smell. Others feel that some people are totally anosmic to some smells (specific anosmia). Another theory is a genetic reason, with the 'loved ones' being carriers of the same problem being a factor for some reason.

One can only speculate as to what exactly is happening. There is one published paper of a study in which people's ability to smell a certain group of smells including trimethylamine were tested. Written in 1975, this paper is a study of a group of a couple of hundred people, which demonstrated that 7% of the group had difficulty detecting the smell of tertiary amines, particularly trimethylamine.

Apparently trimethylamine is usually detectable at a very lows level in humans, the lowest of 53 odors tested in one study, including mercaptans and hydrogen sulfide.

In another paper in 1990, 11.5% of children could not have their detection of TMA measured, which may indicate an anosmia, but the paper says this may be due to them losing interest in the study.

other links of interest


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