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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, September 1, 2010

Diverse languages Body Odor Forums

body odor forum
It is so inspiring to be establishing contact with the various body odor groups throughout the world as we become an even bigger and ever growing international community. With the wonders of the various online translation programs, such as Google translate, that translates webpages for us, and iGoogle gadget (translates into 34 languages), we can read each other’s posts and learn from each other.

We have recently been contacted by a representative of a Polish language forum, ‘Wizaz, Unpleasant smell of leather, even washing’ that has about 40 members who have a Fecal Body Odor condition. The focus of Wizaz is primarily Fecal Body Odor (FBO) as opposed to TMAU. This Polish forum has been making reference to posts in this, our blog, and they are always welcome to write a piece for this site of any thoughts they may wish to share with us.

The representative of this forum has expressed interest in getting any information from us regarding research in Fecal Body Odor, SIBO, and Leaky Gut Syndrome. On the flip side, I also invite all our readers to visit their site, especially a very interesting topic done by one of their members, gelo1987, who writes quite an extensive list of products recommended for an antifungal diet on Post #93, and #97. So far, the forum has 43 pages of interesting posts.

It is a pleasure to be a part of this great and diverse international community!
As previously posted in our blog we have also been in touch with one of the Italian Body Odor, Il forum di bodyodor forum member, who has contacted us, and we now share important information with each other through our forums, blogs, and email correspondence. We have also been in contact for some time now with the Yahoo Spanish Forum, Síndromes de olor corporal (can read posts by membership only, though). And last, but not least, the Spanish Board in the Body Odor Support Forum.

Are there any other communities in other parts of the world who have an online site that would like to be in contact with us as well? If so, please email me. Uniting this way makes us stronger in numbers and may hopefully assist us in grant-seeking campaigns for research effort, not to mention just how much we can learn from each other!

It is a pleasure to be a part of this
great and diverse international community!

María de la Torre
President and Executive Director
MEBO Research


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