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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Wednesday, September 1, 2010

Diverse languages Body Odor Forums

body odor forum
It is so inspiring to be establishing contact with the various body odor groups throughout the world as we become an even bigger and ever growing international community. With the wonders of the various online translation programs, such as Google translate, that translates webpages for us, and iGoogle gadget (translates into 34 languages), we can read each other’s posts and learn from each other.

We have recently been contacted by a representative of a Polish language forum, ‘Wizaz, Unpleasant smell of leather, even washing’ that has about 40 members who have a Fecal Body Odor condition. The focus of Wizaz is primarily Fecal Body Odor (FBO) as opposed to TMAU. This Polish forum has been making reference to posts in this, our blog, and they are always welcome to write a piece for this site of any thoughts they may wish to share with us.

The representative of this forum has expressed interest in getting any information from us regarding research in Fecal Body Odor, SIBO, and Leaky Gut Syndrome. On the flip side, I also invite all our readers to visit their site, especially a very interesting topic done by one of their members, gelo1987, who writes quite an extensive list of products recommended for an antifungal diet on Post #93, and #97. So far, the forum has 43 pages of interesting posts.

It is a pleasure to be a part of this great and diverse international community!
As previously posted in our blog we have also been in touch with one of the Italian Body Odor, Il forum di bodyodor forum member, who has contacted us, and we now share important information with each other through our forums, blogs, and email correspondence. We have also been in contact for some time now with the Yahoo Spanish Forum, Síndromes de olor corporal (can read posts by membership only, though). And last, but not least, the Spanish Board in the Body Odor Support Forum.

Are there any other communities in other parts of the world who have an online site that would like to be in contact with us as well? If so, please email me. Uniting this way makes us stronger in numbers and may hopefully assist us in grant-seeking campaigns for research effort, not to mention just how much we can learn from each other!

It is a pleasure to be a part of this
great and diverse international community!

María de la Torre
President and Executive Director
MEBO Research
maria@meboresearch.org
www.meboresearch.org

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