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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, November 15, 2010

Ways to raise awareness of Body Odor Conditions in the medical community

The best way to raise awareness in the medical community is to introduce professional literature written on this topic funded by the National Institutes of Health (NIH), as well as posts and articles written by sufferers with their permission, regarding what it is like to live with this condition.

Below are a few links that the medical community may find interesting. If you are interested in being a part of our Raising Awareness Campaign, you can select any of these sites and print the article to show anyone of your choosing. In addition to showing them to your doctor, you can also leave a copy or two at his or her office's or hospital waiting rooms.

Most of these articles are written or funded by the National Institutes of Health, so it's legal to copy and distribute. MEBO Research's websites and blog are written by sufferers, which also reference professional papers, and we hereby authorize anyone to print any portions of the MEBO Research publications to distribute. However, due to copyright laws, no paper written and published by a professional can be copied or printed without the permission of the author, but it is acceptable to print short quoted excerpts and to reference them. MEBO's website pages do just that; therefore, it is OK to print them.

Copyright Status
Information that is created by or for the US government on this site is within the public domain. Public domain information on the National Library of Medicine (NLM) Web pages may be freely distributed and copied. However, it is requested that in any subsequent use of this work, NLM be given appropriate acknowledgment.

National Center for Biotechnical Information (NCBI)

Click on icons to print

You may also print any of two different flyers to post them on bulletin boards at schools, universities, churches, and hospital bulletin boards, etc. Arun has authorized that we do so using the Body Odor Support Forum name. One of the flyers has MEBO Research's name on it, and the other has the forum Body Odor Support's name on it. You may print both and place them in strategic places.

Thanks for your participation in this movement.

MEBO Research

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