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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, December 22, 2010

MEBO and Eliapharma now offering single sample TMAU urine test for $80 plus fees and shipping

Update 6

On Friday afternoon, December 17th,The Public Health Agency awarded Eliapharma Services, Inc., the Permit to import Human pathogen(s) into Canada. Shortly thereafter, I began to notify the 43 people already on the waitlist for the TMAU Urine Test through MEBO Research and Eliapharma, to inform them that they could fill out the application form.

This English and Spanish versions of this application was designed by MEBO Research's Technical Consultant, who volunteered to donate countless hours of intense work day in and day out on this holiday season, and I'm certain you will agree with me that he has done a very professional and impressive job indeed!

Well, now Eliapharma is offering yet another option of testing with only one sample for $80 instead of two samples for $110, representing a savings of $30.
We have received an overwhelmingly enthusiastic response, and I'm doing all I can to keep up with the demand, and it's been challenging to get to everyone on a timely basis. I have been informed by FedEx that most major shippers will be having their annual rate increase in January 2011, and that their rates are subject to change until purchased. I also notice that their fuel surcharge have also increased as the gas prices have been increasing at our local gas station.

For this reason, Eliapharma has offered us yet another option to encourage all sufferers of unusual and uncontrollable body odor to test. As originally posted in this blog, this lab has offered two samples per kit for $110 plus fees and shipping costs, with the option of including up to 4 more samples per kit at $60 each. Well, now Eliapharma is offering yet another option of testing with only one sample for $80 instead of two samples for $110, representing a savings of $30.

Hopefully, this will be particularly helpful for persons who live in countries further away from the lab in Canada resulting in higher shipping charge, and with not very favorable currency exchange rates. Nonetheless, anyone interested in participating in this program before the rates go up can fill out the application, and be placed on a waitlist with no obligation. I will try to clear the waitlist on a first come, first served basis as quickly as possible, as I keep in mind that the shipping rates will increase soon.

At the same time, it is a holiday season, and we look forward to enjoy this season with our loved ones. For those wishing to hold a conference call on any specific day of the holidays, please let me know, and I'll contact the ladies that customarily organize them.

Wishing everyone a Merry Christmas, Happy New Year, and whatever else anyone celebrates in during Holiday Season.

María de la Torre
President and Executive Director

Related Posts:

MEBO and Eliapharma TMAU Testing and future research goals

MEBO and Eliapharma TMAU Testing Update 4




More about TMAU testing through MEBO Research

TMAU Test with Eliapharma through MEBO Research

International TMAU testing in Canada : Special Group Rates


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