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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Monday, February 14, 2011

Only 32 days to book your suite for the Washington DC Meetup

MEBO 2nd Annual Meetup at Washington DC

Update 4


PLEASE MAKE SURE TO BOOK YOUR RESERVATIONS BEFORE THE DEADLINE FOR THE MEBO RATES, WHICH IS ON MARCH 18TH. YOU CAN HOLD YOUR RESERVATION WITH A CREDIT CARD, AND YOUR CARD WILL NOT BE CHARGED UNTIL YOU CHECK OUT AFTER YOUR STAY.


MEBO Research is holding our second annual meetup in the US, and this year it will be in Washington DC on April 9th and 10th, 2011 at the Embassy Suites, Dulles Airport.

As previously posted in this blog,
THE DULLES AIRPORT EMBASSY SUITES has created a webpage especially for MEBO Research's annual meetup to facilitate our reservations process!


WE ONLY HAVE 32 DAYS LEFT TO MAKE RESERVATION AT MEBO'S RATES
On this webpage you can see all the hotel and booking details, such as the special rates offered to MEBO members and guests for our meetup, the applicable Check-in dates, booking deadline, Tour Hotel, Maps, Directions, Amenities, and sites to visit in the area. Most importantly, making reservations for our group rate is only a click away.

Room rates include :
  • Complimentary daily full breakfast per person,
  • Complimentary daily 2-hour Manager's Reception, serving alcoholic and non-alcoholic beverages and snacks
  • Complimentary Dulles Airport shuttle,
  • Free self-parking.

NOTE: MEBO's group rate of $89/night are for single, double, triple, and quad occupancy, as stated in the contract I signed with the hotel, so you can share the room cost with a roommate or more, even though the Terms and Conditions state, "Rates published are for single occupancy. An extra person charge per person may apply for 2 or more guests sharing the same guestroom," :

Room
Single Rate
Double Rate
Triple Rate
Quad Rate
Run of House
$89.00
$89.00
$89.00
$89.00

Please read the terms and conditions carefully for information on the multiple taxes imposed on this rate. You can guarantee your room at any time with a credit card, which will not be charged until checkout time after your stay. Inf you wish to cancel your reservation, you would need to do so 24 hours before arrival to avoid cancellation penalties. There is also a fee for early departure.

AGENDA

We have so many new topics of discussion on our first day, Saturday, April 9th, including MEBO's new International TMAU Test Program, new testing opportunities in Europe, presentation on Bromhidrosis and discussion on Dr. John Cashman's interview, MEBO's aims as a now new Public Charity, and more. We will have plenty of time for socializing for breakfast, lunch, and dinner, and during our daily 2-hour Manager's Reception serving complimentary alcoholic and non-alcoholic beverages and snacks.

On the second day, Sunday, April 10th, we can take the nearby Metro and go to the Washington DC Mall, and enjoy all the beautiful sights of this nation's capital. Depending on the weather, we can begin with outdoor activities by visiting the famous Lincoln Memorial, Vietnam, Korean, and World War II Memorials, and then walk our way down to the Washington Monument and further to the Capital Building. There are three Metro Stations in this long 1 mile outdoor "Mall" that we can take to avoid too much walking. If the weather is not great that day, we can always go into any of the Smithsonian Institute Museum buildings that line both sides of this Mall, such as the Air and Space Museum, Natural History Museum, American History Museum, and more. There's plenty to chose from to do once we're there.

Hope to meet so many of you personally! I hope all of you can come. It would most certainly be a wonderful experience.


María de la Torre
President and Executive Director




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