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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Wednesday, February 16, 2011

Reserving your suite for Washington DC Meetup

Slideshow best seen on 720p HD full screen


If you have already booked your Suite at the Embassy Suites,
please call them and make sure they have the
Booking Group/Convention Code: MER

There is a certain amount of rooms we need to reserve in order for our no advance purchase and fully refundable rate to apply.


MEBO's Annual Meetup at Washington DC on April 9th and 10th is for the whole community, even though the webpage created by Embassy Suites has called it “MEBO Research Board of Directors Meeting.” I am not certain why they chose to call it that. Perhaps it’s because since Glenna, who found the site for us and visited it to make sure it suits our needs, is the Director of Public Relations for MEBO, and then I negotiated the rates and signed the contract with Embassy Suites, they assumed that this would be the appropriate name. However, the hotel has set aside suites for all members, not just members of the Board of Directors.

Everyone is invited, and encouraged to make reservations as soon as possible guaranteeing the low rate with a credit card, even though funds will not be held in your card account, and charges won’t be made until checkout at the end of the meetup.

I hope you enjoy this slide show of the sights I hope we can visit, and one of our members has volunteered to try to set up a private tour of the White House for us on Saturday before our conference meeting. More information on these arrangements will be forthcoming as they are finalized.

I look forward to sharing these very memorable experiences with as many people from our international community as possible. See you there!

María

María de la Torre
President and Executive Director




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