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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, February 16, 2011

Reserving your suite for Washington DC Meetup

Slideshow best seen on 720p HD full screen

If you have already booked your Suite at the Embassy Suites,
please call them and make sure they have the
Booking Group/Convention Code: MER

There is a certain amount of rooms we need to reserve in order for our no advance purchase and fully refundable rate to apply.

MEBO's Annual Meetup at Washington DC on April 9th and 10th is for the whole community, even though the webpage created by Embassy Suites has called it “MEBO Research Board of Directors Meeting.” I am not certain why they chose to call it that. Perhaps it’s because since Glenna, who found the site for us and visited it to make sure it suits our needs, is the Director of Public Relations for MEBO, and then I negotiated the rates and signed the contract with Embassy Suites, they assumed that this would be the appropriate name. However, the hotel has set aside suites for all members, not just members of the Board of Directors.

Everyone is invited, and encouraged to make reservations as soon as possible guaranteeing the low rate with a credit card, even though funds will not be held in your card account, and charges won’t be made until checkout at the end of the meetup.

I hope you enjoy this slide show of the sights I hope we can visit, and one of our members has volunteered to try to set up a private tour of the White House for us on Saturday before our conference meeting. More information on these arrangements will be forthcoming as they are finalized.

I look forward to sharing these very memorable experiences with as many people from our international community as possible. See you there!


María de la Torre
President and Executive Director


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