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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, February 11, 2011

Deeply discounted FedEx Country to Country rates for MEBO


Update 8

It's been a long cold winter, so let's warm up a little with pictures I took at Miami Beach this past weekend (and one from Cabo San Lucas, MX), as we read the latest update of our MEBO International TMAU Test Program

Deeply discounted
FedEx Country to Country rates for MEBO Research

Since we need the specimen to arrive frozen to the lab, FedEx has granted deeply discounted rated (45% discount of net rate) to MEBO Research off their International Priority Service (1 to 2 Business day shipping to/from the countries they have service to). This means that a kit could arrive to the lab in Eastern Canada from Hong Kong, for example in one to two business days for only $49.43 USD for one way shipping. According to the Canada Post online website, International Priority Worldwide Pak one way shipping alone would be $87.60 Canadian dollars (which at the current rate of exchange is almost equivalent to the US dollar).

To ship the kit from Honolulu to the lab in Eastern Canada (with one to two Business Days Service), the rate could be $23.65 one way. The only small variable in all cases would be a small fluctuation of fuel surcharge amount, the same as we experience in the gas pumps.

Testing momentum began picking up slowly but surely
We faced many obstacles as MEBO Research and Eliapharma attempted to launch our International TMAU Test Program. There were permits to import Biological Agents (urine) into Canada and Certificates of Origin for each item in the kit, with special attention to importing/exporting a chemical, HCl, etc. I was diligently negotiating rates with FedEx and receiving a great deal of training on shipping to so many countries that we expected to ship to. Then when we were almost ready to begin shipping, the holidays came, FedEx and most major shipping carriers increased their net rates across the board, I became very ill for a long time, the snow storms paralyzed most of North America, and it took FedEx some time to manually upload the great Country to Country rates they offered us.

Initially shipping only within Canada
In an attempt to get things rolling, we began shipping only domestically within Canada. The first three (3) shipments were on December 22nd, and the following four (4) on January 18, 2011. It was very successful, since we didn’t have to be concerned with Customs documentation.

Began shipping Internationally to the United States
Then one glorious day, on February 1, 2011, the FedEx rates manual upload had been completed. As part of our International expansion efforts, we did our first 6 international shipments with a total of 9 samples on Wednesday of last week, February 2, 2011, to a North American Free Trade Agreement (NAFTA) country, the United States, with success clearing Customs.

This week, we have a shipment of 9 kits, which include 13 samples scheduled for FedEx pickup tomorrow to be shipped to the US, and we expect the same positive results. In total, we would have shipped 19 kits with 32 samples to Canada and the United States.

MEBO submits all the orders to the lab by Wednesday evenings, so the lab prepares kits on Thursday for weekly early Friday morning shipments.
Our next stage of development of MEBO’s International TMAU Test Program is to expand to the third NAFTA country, Mexico, and to other countries as well, possibly one country at a time according to the order in which I receive the applications and payments.

I will now be sending and invoice with the new rates to the remaining people on the waitlist, without any obligation, that might have received a shipping rates quote before the deeply discounted rates were uploaded. Please keep in mind that the fuel surcharges fluctuate and that the rates are always subject to change until purchased.

Since we are getting so many requests for kits to be shipped, the Canadian lab, Eliapharma Services Inc., has requested that MEBO submit all the orders to the lab by Wednesday evenings, so the lab can prepare the kits on Thursday for the weekly early Friday morning shipments. Therefore, any payments I receive on a Thursday through Wednesday will go towards the next Friday shipments.

Thanks to all the participants who have patiently supported our efforts.


If you would like to test in our
MEBO International TMAU Testing Program,
please fill out the following,

MEBO-Eliapharma TMAU Test Requisition/Survey Form

María de la Torre
President and Executive Director
MEBO Research


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