Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Labels

March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Wednesday, March 16, 2011

MeBO Research - Eliapharma TMAU testing to test first batch on Monday


Update 10


MeBO Research is happy to announce that the first batch of samples will be prepared for testing for trimethylaminuria this coming Monday, March 21st. Since this is the first batch of samples, precautionary measures will mean the results will not be sent out for a week afterwards, as experts will be consulted to do quality control on the data. Results will be sent by email in PDF format.

Background : MeBO Research has sought to bring to the public the ability to test for trimethylaminuria directly, without a medical referral, as economically as possible, without loss of testing standards. Last year we found a research lab who would test the samples we supplied, Eliapharma Services Inc. near Montreal. The process started around last November and the logistics have been daunting, including finding a suitable test-kit, negotiating rates with FedEx, and working through Customs' many rules.

For example, Initially, Canadian Customs was very cautious with our international shipment of biological goods (urine) entering their country, as was the United States, delaying clearance for a day or two. Thankfully, the Broker MEBO employs expedited the special inspections as quickly as possible, and no samples were damaged. Within a couple of weeks, we seem to have won their trust, and kits have been clearing much faster. Just today, three kits cleared Customs within an hour or two and were quickly on their way to the lab, literally arriving the next day from the point of origin as promised. All the samples are stored frozen at the lab until testing.

MEBO and Eliapharma insist on perfection and professionalism, and nothing else will do. We do appreciate your cooperation and patience as we establish this program for you. At last we are at the testing stage, and have learnt much from the process and will refine the process in the future. Thank you for your support and patience.


If you would like to test in our
MEBO International TMAU Testing Program,
please fill out the following,


MEBO-Eliapharma TMAU Test Requisition/Survey Form


0 comments:

Post a Comment