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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, March 16, 2011

MeBO Research - Eliapharma TMAU testing to test first batch on Monday

Update 10

MeBO Research is happy to announce that the first batch of samples will be prepared for testing for trimethylaminuria this coming Monday, March 21st. Since this is the first batch of samples, precautionary measures will mean the results will not be sent out for a week afterwards, as experts will be consulted to do quality control on the data. Results will be sent by email in PDF format.

Background : MeBO Research has sought to bring to the public the ability to test for trimethylaminuria directly, without a medical referral, as economically as possible, without loss of testing standards. Last year we found a research lab who would test the samples we supplied, Eliapharma Services Inc. near Montreal. The process started around last November and the logistics have been daunting, including finding a suitable test-kit, negotiating rates with FedEx, and working through Customs' many rules.

For example, Initially, Canadian Customs was very cautious with our international shipment of biological goods (urine) entering their country, as was the United States, delaying clearance for a day or two. Thankfully, the Broker MEBO employs expedited the special inspections as quickly as possible, and no samples were damaged. Within a couple of weeks, we seem to have won their trust, and kits have been clearing much faster. Just today, three kits cleared Customs within an hour or two and were quickly on their way to the lab, literally arriving the next day from the point of origin as promised. All the samples are stored frozen at the lab until testing.

MEBO and Eliapharma insist on perfection and professionalism, and nothing else will do. We do appreciate your cooperation and patience as we establish this program for you. At last we are at the testing stage, and have learnt much from the process and will refine the process in the future. Thank you for your support and patience.

If you would like to test in our
MEBO International TMAU Testing Program,
please fill out the following,

MEBO-Eliapharma TMAU Test Requisition/Survey Form


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