Systemic Malodor Disorders Research
USA survey for anyone who wants to improve Denver TMAU test
begun : Dec22 end : no ending for now
A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).
quote from her rareconnect post
"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."
see this post for more details
There has been interest in the body odor support forum recently about the Znose. We do not know if it is the only option for detecting body odor/halitosis using an 'Enose' (electronic nose) to a clinical degree, however it certainly seems up to the job ; measuring molecules in parts per trillion, being reasonably portable, and giving instant results of any peaks in the air. It uses gas chromatography for measurement. This video is from 2006, which seems to be the older Znose model. An potential research route for defining all forms of body odor/halitosis would be to use such a device in a study. In fact the Znose was used for a 'surface' body odor study in the past
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