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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Saturday, April 30, 2011

upcoming UK meetups : 4th June and the big September International meetup

A message from Arun Nagrath, Owner of the bodyodorsupport.com forum
Upcoming London meetups : 4th June and 10-11 September : Everyone welcome

Hi guys, Arun here. Well, for any members who don't know me, I have a scientific background, being a pharmacist with some experience of odour research.

I also organize meet-ups here in London, UK, for sufferers of peculiar breath/body odour conditions, whether diagnosed or undiagnosed. The aim of these Meet-ups is to share tips and to network/brainstorm and also to make new friends who understand what you are going through.

The first Meet-up will be held 1pm onwards on Saturday June 4th 2011. It will be held on a boat called The Tattershall Castle, moored on the river Thames near Embankment underground station. It is an informal event, just turn up in jeans if you like. We tend to stay on the boat till evening and you can come and go when you please. We sit on benches near the outside bars and have drinks and snacks.

The second meetup will be held in the same place 1pm onwards on BOTH Saturday 10th and Sunday 11th September 2011. The meetups are a lot of fun and most members stay all day. Some come and just listen whilst others chat about their experiences and the nightmare they have been through.

People come from all over England to our meetups. The September meetup is an International meetup and members come from all over the world. We may get 8 members coming from the US alone this year! I will have my mobile with me at the meetups in case anyone gets lost. The number is 07753 492 759.
Arun (Scientist42)

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