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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, May 2, 2011

TMAU (Trimethylaminuria) urine testing in the UK for £170 and £177 in Europe

tmau testing ukMEBO Research is pleased to announce an arrangement in the UK with Smart Nutrition to offer the trimethylaminuria urine test via mail order for £170 in the UK and £177 in Europe. Through Biolab Medical Unit, the test is sourced by the Department of Clinical Chemistry, Sheffield Children's Hospital where Nigel Manning, Principal Clinical Scientist, performs most if not all of the UK's TMAU tests.

One of the goals of MeBO Research is to make trimethylaminuria testing more widely accessible. In the UK, the only test source currently known of is Sheffield Children's Hospital through NHS. Unfortunately, NHS will not allow people to test directly (even for a fee), so we have been looking for ways to get around this obstacle, in order for people to test directly for a fee if they wish.

Through an arrangement with Biolab and, we are now happy to offer the TMAU urine test for £170 (£177 in Europe), which is the least costly in the UK for those who wish to test directly. In the future we are looking for other sources and to bring the price down; however this is the best we can offer for now.

The test is available online here,
scroll down on the page to order your test:

A voluntary survey for MEBO Research is added to the form, so that MeBO can collate the anonymous data for future research (hopefully). Smart Nutrition has also kindly offered to donate £5 off the price to MeBO Research, as noted on their site. An anonymous copy of the results will also be sent to MEBO Research.

Smart Nutrition Website
Each customer will receive a PDF copy of their results directly from Smart Nutrition with a brief interpretation, as well as a PDF giving general information about TMAU. The founder of Smart Nutrition, Emma Wells, Dip ION, NTC, CNHC, is a Nutritional therapist, lecturer and health writer; and, she may also provide further consultation advice for a fee, to those who wish to do so. Emma was not aware of TMAU when we first contacted her in early 2011, but is has been researching and developing a nutritional program for sufferers, that we hope will also expand to include nutritional therapy for other types of body odor conditions. These consultations are not part of the arrangement with MeBO Research, but we mention it so people are aware of the service.

In the UK, it should be noted that the test can be done via the NHS without charge.


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