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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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Blog Archive

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Thursday, July 21, 2011

Lady on UK mid-morning TV show talking about her TMAU (Trimethylaminuria)

Thank you Karen for bravely raising awareness so articulately on a high-profile TV show. Our community is the benefactor. In the 8 minute interview, Karen manages to explain that 'fish odor syndrome' does not cover the range of smells people can have. She also mentions the MEBO Research petition, which is part of the campaign by our international patient advocacy group to raise awareness, reach out to sufferers in the community to provide support, and to initiate research.

For the last 10 years, 44-year-old Karen James has suffered from Trimethylaminuria (TMAU) otherwise known as fish-odour syndrome.

Her breath constantly smells of rotten eggs and the problem also affects her sweat under times of stress. Unfortunately there is no cure.

Karen’s symptoms started showing following some travel injections and a recurrent throat infection but she was told by doctors to just live with it. It was only through her own research that she find out about TMAU.

Karen, who joins us today alongside Dr Dawn, describes her condition as an unrecognised disability and finds it difficult to lead a normal life.

Trimethylaminuria UK Support Website
Bringing together people who have Trimethylaminuria (TMAU) , their families, friends and healthcare professionals in a positive, caring and supportive environment.
itv, this morning

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