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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Friday, February 10, 2012

Rare Disease Day USA February 29, 2012


A few MEBO Board members have received an email from the National Organization for Rare Disorders (NORD) informing us of the events that are to be held on Rare Disease Day, February 29, 2012. This is the message they extend to our community:



Have You Made Your Plans for Rare Disease Day 2012 Yet?

On February 29th, Rare Disease Day Partners across the U.S. and around the world will be hosting events, sharing stories, and showing support in other ways. National events include the NIH Rare Disease Day symposium on February 29 and the FDA Patient Advocacy Day on March 1.

NORD has chartered a bus to take patient advocates to the FDA event on March 1. Seating is limited. Patient organization representatives wishing to reserve a seat on the bus should write to amvallarino@rarediseases.org.

Here's a brief wrap-up of other plans that have been shared to date through the Rare Disease Day US website.



As noted on a previous post in this blog, Fifth International Rare Disease Day by EURORDIS, this event is an international one celebrated throughout the world.



February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries. On this day hundreds of patient organisations from more than 40 countries worldwide are organsing awareness-raising activities converging around the slogan “Rare but strong together”.

Activities will take place across Europe, all the way to Russia, continuing to China and Japan, in the US and Canada, and as far as Australia and New Zealand! Get involved!

We hope you will have to opportunity to participate in any of these events. Have a great time if you do.



halitosis research
THE MEBO TEAM

A Public Charity
www.meboresearch.org
maria.delatorre@meboresearch.org
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body odor petition

2 comments:

Mary at LaL Solace said...

Thank you for supporting Rare Disease Day! My child passed away from a rare genetic disease called early-onset LAL deficiency (also known as Wolman disease) in 2009. Rare Disease Day means so much to the millions of people and families affected by the approximately 7,000 rare diseases. Thanks again! Mary http://www.lalsolace.org

Feb 22, 2012, 12:22:00 PM
Maria de la T., Founder and Executive Director, MEBO Research said...

Mary,
How tragic that you have lost your child to a rare genetic disease. I hope you find some solace in knowing that we are all united together to stand as a strong entity to promote research and find cures, one at a time if necessary.
María

Feb 22, 2012, 12:33:00 PM
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