Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, September 2, 2012

TMAU result stats from Sheffield UK 1997-2011

As part of conference at the recent MEBO Research Miami Beach Meetup in June, Nigel Manning, Principal Clinical Scientist in the department of Metabolic Biochemistry at Sheffield Children's Hospital (i.e. the UK TMAU tester), kindly provided MEBO with the latest statistics on their urine (phenotype) triemthylaminuria testing program.

A bar graph and dot graph were kindly provided. A trend of note was the bar graph shows that TMAU testing requests increased significantly since 2006, and especially over the last 2 years (to nearly 600 requests per year).

Note : Each TMAu lab sets their own reference range. The Sheffield ref ranges using gas chromatography are :
TMA concentration normal : 2.5-10.9 umol/mmol creatinine
TMAO normal : 17-147 umol/mmol creatinine
TMA/TMAO ratio normal : 0.05-0.21 (% TMAO should be, according to diagram, >79%)

bar graph of Sheffield TMAU results 97-11
dot graph of Sheffield TMAU results 97-11

PDF : Sheffield UK TMAU results 1997-2011 as a bar graph
PDF : Sheffield UK TMAU results in a dot graph with reference range lines

MEBO Research


Post a Comment