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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Monday, January 28, 2013

TMAU webinar with George Preti, Paul Fennessey, and Danielle Reed

5th Webinar


Trimethylaminuria webinar 
Friday 1st February 5pm GMT (noon EST)
 Everyone Welcome

Invitation to 5th TMAU Webinar 
With guest speakers :
George Preti, Ph.D. (Monell Chemical Senses Center)
Paul Fennessey, Ph.D.(University of Colorado Health Sciences Center)
Danielle Reed, Ph.D. (Monell Chemical Senses Center)

Titles of slideshows :
Updates on genetics of trimethylaminuria (Danielle Reed)
TMAU :  evaluation of individuals with malodor problems (Preti, Fennessey, Reed)

We are delighted to announce the upcoming webinar which will feature 2 researchers who have been eminent in researching and raising awareness of TMAU for many years : George Preti Phd and Dr Paul Fennessey. We are also delighted to have as a guest speaker Danielle Reed Phd, a geneticist at Monell Chemical Senses Center who is currently doing research into TMAU with the small grant awarded by NORD which was raised by the community (Danielle Reed and George Preti, “Revisiting TMAU through exome sequencing,” 1-year grant from the National Organization for Rare Disorders and the Trimethylaminuria Foundation). Everyone is welcome to attend though only 50 places are available. Permission has kindly been granted for the webinar to be recorded and made public.

About George Preti : Monell page for George Preti
Pubmed abstract on TMAU

About Paul Fennessey : Dr Paul Fennessey detail
Pubmed abstract on TMAU

About Danielle Reed : Wikipedia entry for Danielle Reed
Monell webpage for Danielle Reed

Webinar technical details :
Webinar room is here : http://eurordis.emea.acrobat.com/rare_disease_communities/
No need to use your real name. No password needed. Sign in as 'guest' if you wish

The webinar is being provided by rareconnect.org, part of Eurordis
Visit the rareconnect.org trimethylaminuria community

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