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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Monday, January 28, 2013

TMAU webinar with George Preti, Paul Fennessey, and Danielle Reed

5th Webinar


Trimethylaminuria webinar 
Friday 1st February 5pm GMT (noon EST)
 Everyone Welcome

Invitation to 5th TMAU Webinar 
With guest speakers :
George Preti, Ph.D. (Monell Chemical Senses Center)
Paul Fennessey, Ph.D.(University of Colorado Health Sciences Center)
Danielle Reed, Ph.D. (Monell Chemical Senses Center)

Titles of slideshows :
Updates on genetics of trimethylaminuria (Danielle Reed)
TMAU :  evaluation of individuals with malodor problems (Preti, Fennessey, Reed)

We are delighted to announce the upcoming webinar which will feature 2 researchers who have been eminent in researching and raising awareness of TMAU for many years : George Preti Phd and Dr Paul Fennessey. We are also delighted to have as a guest speaker Danielle Reed Phd, a geneticist at Monell Chemical Senses Center who is currently doing research into TMAU with the small grant awarded by NORD which was raised by the community (Danielle Reed and George Preti, “Revisiting TMAU through exome sequencing,” 1-year grant from the National Organization for Rare Disorders and the Trimethylaminuria Foundation). Everyone is welcome to attend though only 50 places are available. Permission has kindly been granted for the webinar to be recorded and made public.

About George Preti : Monell page for George Preti
Pubmed abstract on TMAU

About Paul Fennessey : Dr Paul Fennessey detail
Pubmed abstract on TMAU

About Danielle Reed : Wikipedia entry for Danielle Reed
Monell webpage for Danielle Reed

Webinar technical details :
Webinar room is here : http://eurordis.emea.acrobat.com/rare_disease_communities/
No need to use your real name. No password needed. Sign in as 'guest' if you wish

The webinar is being provided by rareconnect.org, part of Eurordis
Visit the rareconnect.org trimethylaminuria community

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