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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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Blog Archive

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Monday, September 9, 2013

WEGO Health, Empowering Health Activists

One of the MEBO Directors received the following invitation from SusanM of the WEGO Health Team, and anyone and everyone in our community who would like to be a part of our MEBO Raising Awareness Campaign is welcome to join and participate. If you would like to represent our cause united with other sufferers of our international community, please let me know at, and I'll put you in touch with each other.

The following is a copy of the email received:

From: Susan Mees
Date: September 9, 2013, 2:00:04 PM CDT
Subject: Speaking Opportunities on Health Issues

Greetings from WEGO Health!

As part of our ongoing mission to empower Health Activists, patients, and caregivers, WEGO Health will be holding regular, paid focus groups centered around various health topics and the online community.

These discussions will bring together bloggers, tweeters, and active community members to discuss their health condition, their favorite resources, and ways to help raise awareness and share information. These discussions will last one hour and will give you the opportunity to connect with others like you who are interested in health, social media, and living well with illness. Each panelist will be featured on the WEGO Health blog and social platforms and will receive compensation for their time.

To be included in our panels, just tell us a little bit about yourself (and the conditions that matter most to you):

If you have any questions, please email us directly at

We look forward to speaking with you soon!


The WEGO Health Team

WEGO Health | 180 Lincoln St, Fifth Floor | Boston, MA 02111

For more information, visit the WEGO Health website, ABOUT WEGO HEALTH


María de la Torre
Founder and Executive Director

A Public Charity (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

A EURORDIS and NORD Member Organization 


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