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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Sunday, October 20, 2013

Todays webinar postponed : Technical difficulties



Cheryl L. Fields, MBA, Ph.D. (ABD)
Human Resources Consultant
MEBO US Community Outreach Director

Unfortunately, we had technical difficulties today as we tried to set up for "Webinar #7: "Seeking Employment" Cheryl Fields." It will be rescheduled for another day to be announced in this blog, RareConnect site, and Facebook. This is a message from Cheryl:

Good morning everyone, my audio system is NOT connecting to the webinar.

Webinar "Seeking Employment" will be RESCHEDULED, due to technical issues.

Unfortunately, I cannot be heard in the webinar. 
This is very disappointing as I was geared up and ready to go.
Due to schedule conflicts we did not have an opportunity to test
the site before this morning. I apologize for the technical problems.
I LOVE talking about human resources. What I will do is get with Rob
and Maria on Tuesday.
I have some awesome slides for my PowerPoint presentation. Thank you for your
*This series will be re-scheduled. Please stand by for details. (sigh)
“Hope is tomorrow's veneer over today's disappointment.” [Evan Esar]
Thank you so very much for your time, patience, and understanding.
Very Sincerely,

Cheryl Fields, MBA, Ph.D. (ABD)
6915 67th Street, #107
Kenosha, Wisconsin 53142-1477
(262)-764-0737, Voice-Mail/Home


Best regards,

A EURORDIS and NORD Member Organization


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