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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov
MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

TMAU Movie


THE BOY WHO
SMELLS LIKE FISH

Movie also called,
TREADING WATER
See trailer'
Winner of Golden Trailer Award 2013

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Employment Ideas


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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Sunday, October 20, 2013

Todays webinar postponed : Technical difficulties

7th WEBINAR

"SEEKING EMPLOYMENT"

by
Cheryl L. Fields, MBA, Ph.D. (ABD)
Human Resources Consultant
MEBO US Community Outreach Director

Unfortunately, we had technical difficulties today as we tried to set up for "Webinar #7: "Seeking Employment" Cheryl Fields." It will be rescheduled for another day to be announced in this blog, RareConnect site, and Facebook. This is a message from Cheryl:


Good morning everyone, my audio system is NOT connecting to the webinar.

Webinar "Seeking Employment" will be RESCHEDULED, due to technical issues.

Unfortunately, I cannot be heard in the webinar. 
This is very disappointing as I was geared up and ready to go.
Due to schedule conflicts we did not have an opportunity to test
the site before this morning. I apologize for the technical problems.
I LOVE talking about human resources. What I will do is get with Rob
and Maria on Tuesday.
I have some awesome slides for my PowerPoint presentation. Thank you for your
patience.
*This series will be re-scheduled. Please stand by for details. (sigh)
“Hope is tomorrow's veneer over today's disappointment.” [Evan Esar]
Thank you so very much for your time, patience, and understanding.
Very Sincerely,


Cheryl Fields, MBA, Ph.D. (ABD)
6915 67th Street, #107
Kenosha, Wisconsin 53142-1477
(262)-764-0737, Voice-Mail/Home



URL: https://www.rareconnect.org/en/community/trimethylaminuria/article/webinar-7-seeking-employment-by-cheryl-fields#p_2655

Best regards,


A EURORDIS and NORD Member Organization

posted by Maria de la Torre on 10/20/2013
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