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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, November 7, 2013

"Simply Delicious: A Low Choline Recipe Book"

"Simply Delicious: A low Choline Recipe Book."

by Sonya McClinton

Click here for Amazon US
Click here for Amazon UK

Note : If you don't have a kindle, if you click through the links above there is details on the right hand side of the page on how to download a free app to enable you to read the book on any device (PC, smartphone, ipad, tablet etc)   

I am proud to Introduce the "Simply Delicious: A Low Choline Recipe Book" created by our long-time and very dear friend, Sonya McClinton, who is a Trimethylaminuria sufferer. Sonya is a mom and wife who has a passion for cooking. After being diagnosed with TMAU in 2013, she began to search for a low choline recipe books. When Sonya discovered no such books exists, she decided to write her own in order to help others with this condition. It is the first and only low choline cookbook in the market. This is a much needed, must-have book for all TMAU sufferers who must live on a low choline diet to control TMAU symptoms.

The book includes seventy-five low choline recipes with the choline content and serving size listed for each.
Sonya wrote this book specifically for people who suffer with Trimethylaminuria, although it may also be helpful to others, since a link between choline consumption and heart disease is being researched implying the need for low choline diet for other medical conditions as well, as noted in the video below. This book contains easy to prepare, tasty recipes for people who cannot tolerate foods high in choline. The book includes seventy-five low choline recipes with the choline content and serving size listed for each. Categories include Light and Easy Breakfast Recipes, Simple Lunches, Delightful Dinners, Super Sides,and Decadent Desserts. These Delightful recipes prove that a diet low in choline does not have to be bland and tasteless.

What better time for this book to come out than now for the holiday season! It's the time of year when we share many special meals with family and friends, and up to now, sufferers of TMAU had to either give up the pleasures of good food or suffer the consequences of body/breath odor symptoms. Now, we have many other choices, thanks to Sonya's new book!

"Simply Delicious: A Low Choline Recipe Book" is an e-book for Kindle; however, it can still be read in PCs, smartphone or tablet with the free Kindle reading app. No Kindle device is required. Note : in order to make sure MEBO get commission on a purchase, we would be grateful if after downloading the app you then return here to go through one of our Amazon links to buy the book. 

Thanks, Sonya for contributing such valuable information to our community. In effect, you will be changing people's lives in a very special way - we can now enjoy the food we eat!

Note : By going through any of the Amazon links in this post or in the blog sidebar, MEBO Research charity should get a small commission of around 5% of the sale at no extra expense to the buyer. MEBO Research is not given any personal details of purchases by Amazon, other than that the item has been purchased. You can also give the links to others by email or on other sites.

If you wish MEBO Research to get a small  commission of any purchase of the book/ebook, you can go through these links or give them to others :

Amazon USA full link

Amazon UK full link

Amazon UK shortened link

Or you can go through the Amazon links on either sidebar

Related link: What to eat on a low choline diet

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

María de la Torre
Founder and Executive Director

A Public Charity (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

A EURORDIS and NORD Member Organization 


sweetgirl said...

I am 61 yrs old & not technologically current on regularly reading material on "apps" & "kindles". Why not just put out a good old fashioned BOOK on the subject of TMAU and remedy diet? If there's an author out there writing this book, plz let me know how I can buy it from u!!!!

Jan 30, 2017, 10:31:00 AM
Unknown said...

A relative of mine suffers from TMAU and I have been looking for this book online for the past few days. However, both the Amazon US and Amazon UK links no longer work and the book cant be found on both sites. I really would like to buy this book, can anyone please help?

Oct 12, 2018, 1:37:00 PM
blogcontributor2 said...

It's not known why the book is no longer available on Amazon. The author said about a month ago she is looking for another site to sell it from.

Oct 12, 2018, 4:36:00 PM
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