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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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Blog Archive

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Wednesday, December 4, 2013

Seminar at Monell center Dec 10 which may interest TMAU people

Seminar at Monell Chemical Senses Center, Philadelphia
December 10 at 11.30 a.m
Speaker : Professor Emily Balksus
Subject : Gut Reactions: Understanding disease-associated chemistry from the human microbiota

We have been told that this seminar may be of some interest to the trimethylaminuria comunity, as Professor Balksus has done a previous paper to do with choline metabolization and trimethylamine.

The seminar is intended for academics and is academic orientated, however ordinary people with TMAU are welcome to attend, with the understanding perhaps only part of the seminar will be about their research connection with TMAU, and that the whole seminar is orientated to academic participants.

The main page about the seminar is here : 10th December seminar

We are also told that those wishing to attend, the main way to attend is :
Instructions: 3500 Market St. Philadelphia PA, 19104, check in at front desk  

Links :
Balksus paper 2012 : Microbial conversion of choline to trimethylamine requires a glycyl radical enzyme
Balksus Lab, Harvard University


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