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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, June 9, 2014

Shop at Amazon and raise money for MEBO too (win/win)

Anyone who shops at Amazon can buy their purchases as normal and raise money for MEBO Research AT NO EXTRA COST TO THE PURCHASER.

There are 2 ways people can buy their Amazon purchases and raise money for MEBO at no extra cost.


 If you visit Amazon via the MEBO Amazon ASSOCIATE links and buy something, MEBO may get around 5% of any purchase. Examples of these are the Amazon links in the sidebar. If you think of it as a window to Amazon, as long as you go through the MEBO window then MEBO should get a % of Amazon purchases.

You don't need to visit the blog to visit Amazon this way. As long as you use links with MEBO's tags then MEBO will get a % of the purchase. If you think of it as a window to Amazon, if you use the MEBO window to Amazon then MEBO will get commission on purchases. The part to look for in the link is 'mri0a-20'

This is the link for the Amazon USA page
(tip : save/replace this in your favorites/bookmarks as your link to
This link can be given to others

Amazon USA homepage via MEBO

So if you have saved in your browser, you could replace it with this link instead. There will be no difference in prices. You can also give the link to others.

MEBO receives no personal details about the purchaser

Amazon UK homepage via MEBO
Amazon UK homepage via MEBO

Or use the Amazon links in the sidebar

2 : Amazon Smile :

Amazon has recently started Amazon Smile, which gives around 0.5% of any purchases to a charity of your choice at no extra cost to the purchaser. Since MEBO is a registered USA charity, then you can choose to give this to MEBO. Amazon Smile seems to currently be USA only.

Amazon Smile is basically Amazon with a different look.

Since MEBO only get 0.5% of any purchase with Smile, whereas the other program can give MEBO around 5%, a suggestion is that if you wish MEBO to get commission from an Amazon purchase then going through the MEBO Amazon Associates links would be the best option. Choosing Smile would only be for those who still wish MEBO to get some commisison but for some reason do not wish to use the MEBO Amazon Associates links.


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